It's been awhile since I posted but just wanted to add HOPE for any newbies.
2years post diagnosis for DH
Surgeries all over 1 year ago
Chemo rounds - too many to count- pretty much every 2 weeks for 2 years with longest break of 3 months a year ago
At least a dozen fun trips both home and abroad since diagnosis
Another new puppy
Son graduated college and daughter graduating in May
We are in a new norm. Yes, still scared for what lies ahead but hopeful to somehow still remain a few steps ahead of this dreadful disease and live In the present. Original prognosis was 2 years, if lucky. Still defying that!
Thankful for our doctors and for this group and many others!!!
I am borrowing this from a Facebook support site and hope that is okay. Just found it to be an extremely helpful and encouraging post listing the MANY options available. Hope it helps others as it helped us.
Credits to JD:
Chemo- 2 to 3 main lines, Folfox, Folfiri, Folfoxiri.
Erbitux/Vecitibix depending on Kras status.
Xeloda (maintenance) and Xeliri
Avastin ( not chemo)
Post-chemo oral lines- Lonsurf and Stivarga ( not great, but buy time)
Open surgery
VATS surgery
Laser assisted surgery (lungs)
Open ablation (during surgery)
Non surgical ablation
y90 (liver mets)
HAI pump (liver mets)
SBRT/Cyberknife
Proton Therapy
Off-label immunotherapy
Various clinical trials
Off-label drugs (prescription)
Off-label chemo ( for other cancer, active against CRC)
Supplements