Basil wrote:This is a very mundane post but I figure it may resonate with someone here, either now or in the future.
I was diagnosed stage iii with one suspicious node in March. Had a great reaction to preadjuvant chemo (trial with no chemorad) and my pathology report showed a complete response after LAR/TME. Great news. Since then I’ve had my latter six rounds of FOLFOX cancelled (IDEA study) and gone through reversal. Recovered and doing well.
I know the stats on recurrence and I’ve talked with my onc in depth. The stats are very good for me. Still, I’d never really felt like I thought I should be being “NED.” I felt more like the odds are in my favor but the balls are still in the air. And I know I’m some sense that’s really where I am.
I had my first surveillance appointment this week, nothing more than blood work and a cursory exam. Everything was as it should be. My CEA is 1.5. I wasn’t expecting this but I feel like a weight has been lifted from my shoulders. I guess some part of me felt everything would go to shit ASAP once I got the surgery/reversal issues worked out. It didn’t and I really feel for the first time I’m cancer free. I know it could come back and, if it does, it will probably happen in the next year or two. But my head is now for the first time telling me that’s unlikely and I’m probably on the down slope of this thing. Thought I would have had that feeling when I got the call telling me there was no cancer in the specimen they removed in surgery. I didn’t but it’s happened now. It’s a great feeling and one I hope you all get to have.
Fingers crossed/no jinx
Basil wrote:...I felt more like the odds are in my favor but the balls are still in the air. And I know I’m some sense that’s really where I am...
O Stoma Mia wrote:Basil wrote:...I felt more like the odds are in my favor but the balls are still in the air. And I know I’m some sense that’s really where I am...
Yes, I think the balls are probably still in the air, and they'll probably reach their highest point around the time of the 4th or 5th quarterly review - - i.e., about a year or so from now...
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