Freaked out.

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Swirdfish
Posts: 271
Joined: Sun Jun 19, 2016 3:57 am

Freaked out.

Postby Swirdfish » Wed Dec 06, 2017 6:17 am

Hi everyone. Fish again.

Hope your all doing well.

Well my 6 monthly scan was all good. Xray of lungs and ultrasound of abdomen. My next scan isn't until march/April. That will be my yearly scan.

Anyhow over the last couple of weeks I've noticed a discomfort that I think feels like a lump on my left side just under the rib cage at the back. It comes and goes but it's noticeable. This is the side I usually get alot of gurgling from. :(

CRA was normal at last scan.

Okay should I get an early CT scan. Or ultrasound on this area.

Anyone else have this issue or am I just freaking out. I must pay attention to my body and not ignore it. That has cost me dearly all ready.

Can u feel metastic tumors?
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

AussieAssCancer
Posts: 219
Joined: Sat May 21, 2016 10:16 am

Re: Freaked out.

Postby AussieAssCancer » Wed Dec 06, 2017 8:09 am

I feel your pain Fish, I have pain in my hip at the moment and my first thoughts are Mets. I think it’s the nature of the beast.

I’d go and see your GP first and get them to have a good feel around. If it comes and goes my bet is it isn’t a met.

If they do find something then they can refer you on the spot.

I’m sure all will be well

AAC

PS - I’ll be taking my own advice once I get back from working away from home and stress dies down. Strangely enough I had the pain before my trip to Hawaii, and barely noticed it while on hols, and lo and behold it’s back.
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

User avatar
Maggie Nell
Posts: 673
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Freaked out.

Postby Maggie Nell » Wed Dec 06, 2017 9:42 am

So....AAC....you going to post some photos of your Hawaiian holiday so we can all get
into the mood of Mele Kalikimaka? I'm tossing the traditional red/green/white
anglophile melburnian chrissie deccos and getting Pacific.........send me some
eye candy or else I'll stick another pin in the hip of the voodoo doll.... :twisted:
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Swirdfish
Posts: 271
Joined: Sun Jun 19, 2016 3:57 am

Re: Freaked out.

Postby Swirdfish » Wed Dec 06, 2017 4:34 pm

AussieAssCancer wrote:I feel your pain Fish, I have pain in my hip at the moment and my first thoughts are Mets. I think it’s the nature of the beast.

I’d go and see your GP first and get them to have a good feel around. If it comes and goes my bet is it isn’t a met.

If they do find something then they can refer you on the spot.

I’m sure all will be well

AAC

PS - I’ll be taking my own advice once I get back from working away from home and stress dies down. Strangely enough I had the pain before my trip to Hawaii, and barely noticed it while on hols, and lo and behold it’s back.


Perhaps I am just freaking out. I dont know what I want anymore. I'll see the GP. After I go fishing lol.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

AussieAssCancer
Posts: 219
Joined: Sat May 21, 2016 10:16 am

Re: Freaked out.

Postby AussieAssCancer » Thu Dec 07, 2017 2:52 am

LOL Maggie! Not the other hip!!!

Soon as I work out I’ll pop some up. The Xmas decorations were starting to go up the day after Halloween :shock:
Dx Oct '15 w/ Stage 3c RC
Nov '15 - Jan '16: 3x FOLFOX and 5wks Chemoradiation w/ Xeloda
March '16: ULAR w/ temp ileostomy
Complete pathological response incl 0/12 nodes
April '16: Clear CT (NED)
May - Aug '16: 9x FOLFOX (dropped Oxaliplatin for final Rd due to neuropathy)
Dec '16: Clear CT (NED)
Feb '17: Ileostomy reversed
Aug '17: Clear CT (NED)

Blog: kickingrectalcancerintheassblog
https://kickingrectalcancerintheassblog.wordpress.com/

User avatar
Maggie Nell
Posts: 673
Joined: Wed May 27, 2015 1:57 am
Location: Melbourne, Australia

Re: Freaked out.

Postby Maggie Nell » Thu Dec 07, 2017 7:51 am

I have been scoffing the homebrand christmas mince-pies from the Woollies
ever since they appeared mid-September....... :oops:
DX April 2015, @ 54
35mm poorly diff. tumour found upon emergency r. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

User avatar
LeonW
Posts: 318
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Freaked out.

Postby LeonW » Thu Dec 07, 2017 9:22 am

Swirdfish wrote:. . . lump on my left side just under the rib cage at the back. It comes and goes but it's just noticeable . . .

I have/had something similar a early 2016. Felt a hardened spot, left under rib cage. Walnut size. It came and went. Not really hard, but not soft either. Had it at the front.
Docs had a look (palpated) and were not worried. Scans and blood remain OK. I'm no longer nervous either and have forgotten about it.

It's still there, sometimes. My layman's guess is that it may be the place where the colon was stitched together? A double layer, slightly hardened because it has been there a long time?
I haven't asked my docs, since. I always forget about it.

No idea is this guess makes sense. Anyone here who can shine light?
Leon
Dec 2012 - Dx CC; MM 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) pCR; cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, 2x2017
next: June 2018 w scopy - 5yr getting close

Swirdfish
Posts: 271
Joined: Sun Jun 19, 2016 3:57 am

Re: Freaked out.

Postby Swirdfish » Thu Dec 07, 2017 6:27 pm

LeonW wrote:
Swirdfish wrote:. . . lump on my left side just under the rib cage at the back. It comes and goes but it's just noticeable . . .

I have/had something similar a early 2016. Felt a hardened spot, left under rib cage. Walnut size. It came and went. Not really hard, but not soft either. Had it at the front.
Docs had a look (palpated) and were not worried. Scans and blood remain OK. I'm no longer nervous either and have forgotten about it.

It's still there, sometimes. My layman's guess is that it may be the place where the colon was stitched together? A double layer, slightly hardened because it has been there a long time?
I haven't asked my docs, since. I always forget about it.

No idea is this guess makes sense. Anyone here who can shine light?
Leon


My guess is its in the area of the spleen. I did have also a para aortic lymph node removed. After surgery I had a lymphatic leak and was losing 2 litres per day for 4 weeks after removal of my nodes. This then stopped. After surgery I noticed gurgling noises from this area and now it's more tender and sometimes I can feel I believe something hard in there.

Maybe I'm thinking too much into it. But I think it's worth getti g chescked out.

Ultrasound perhaps or an early CT MRI.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

Swirdfish
Posts: 271
Joined: Sun Jun 19, 2016 3:57 am

Re: Freaked out.

Postby Swirdfish » Thu Dec 07, 2017 7:06 pm

Swirdfish wrote:
LeonW wrote:
Swirdfish wrote:. . . lump on my left side just under the rib cage at the back. It comes and goes but it's just noticeable . . .

I have/had something similar a early 2016. Felt a hardened spot, left under rib cage. Walnut size. It came and went. Not really hard, but not soft either. Had it at the front.
Docs had a look (palpated) and were not worried. Scans and blood remain OK. I'm no longer nervous either and have forgotten about it.

It's still there, sometimes. My layman's guess is that it may be the place where the colon was stitched together? A double layer, slightly hardened because it has been there a long time?
I haven't asked my docs, since. I always forget about it.

No idea is this guess makes sense. Anyone here who can shine light?
Leon


My guess is its in the area of the spleen. I did have also a para aortic lymph node removed. After surgery I had a lymphatic leak and was losing 2 litres per day for 4 weeks after removal of my nodes. This then stopped. After surgery I noticed gurgling noises from this area and now it's more tender and sometimes I can feel I believe something hard in there.

Maybe I'm thinking too much into it. But I think it's worth getting checked out.

Ultrasound perhaps or an early CT MRI.


I had ULAR surgery so my join is a lot lower.

I don't want to say this. But it could be possible to spread to the spleen being part of the lymphatic system?

Stuff this cancer ****shit.
06/2016 Went in for colonoscopy came out with a tumor. Age 35
12cm from verge at junction. Rectal cancer.
Clinical stage T3 NO MO
Temp illestomy
Completed 5FU and Radiation
LAR surgery planned 13 Oct 2016
Completed ULAR surgery 11-10-2016.
0/22 nodes
pT3 N0 M0 R1
Stage 2A

Pathology reviewed and changed
ypT3 N0 M0 R0

Started folfox 21-11-2016
5-4-17 NED
Reversal 12-4-17

User avatar
LeonW
Posts: 318
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Freaked out.

Postby LeonW » Fri Dec 08, 2017 6:07 am

Swirdfish wrote: My guess is its in the area of the spleen.

I had colon removed @ splenix junction.

If this is any help: my 'lump' also varied between soft (hardly palpable) to fairly solid - walnut size. But at the front (not deep/at the back, as yours)
Started to feel it Q1 2015. Had an extra colonoscopy immediately. All 6 CT's since (regular 6 months checks) said 'normal spleen'. (My docs never do ultrasound or MRI for checkup).
I've accepted that it sits there and no longer worried. Hence my 'colon connected' theory (that hasn't been confirmed)

I think it's worth getting checked out.

Of course. Let us know the outcome.

Wish you that yours is nothing too.
L
Note: It was in April 2015, not 2016 as said in earlier post
Dec 2012 - Dx CC; MM 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) pCR; cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, 2x2017
next: June 2018 w scopy - 5yr getting close


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