5 years ago

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5 years ago

Postby kiwiinoz » Wed Dec 06, 2017 12:28 am

Hi All

I have officially reached my 5 year mark from diagnosis on 05 December and am pleased to say, that despite a negative diagnosis I am still here and doing well.
Life has changed from thinking about cancer to being at work and struggling to keep work going and having to deal with day to day pressures. Whilst I don't necessarily enjoy those pressures I am pleased to have them as it means I am still here.

To those of you undergoing treatment, keep your chins up as there is always light at the end of the tunnel.

I still love coming to this site as it offered me so much hope and support when I needed it, which is why I keep returning.

Kiwi (still waiting for 5 years from last resection :D )
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 March 2017
Port Out 26 March 2015

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Re: 5 years ago

Postby CRguy » Wed Dec 06, 2017 2:12 am

The drive for FIVE and stayin' alive ...

Congrats on the milestone
Keep them coming

Cheers and Harmony
on the Journey with you

Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Facebook Username: Robin.lawthers
Location: Florida

Re: 5 years ago

Postby Robino1 » Wed Dec 06, 2017 9:00 am

Congratulations and here's to many more! :D
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo Stage II
Distended abd, pain in intestines.
CT scan shows seeding
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7; 11/30/17 - 70.7
BRAF V600e mutation :(

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Re: 5 years ago

Postby stu » Wed Dec 06, 2017 9:44 am

Oh that’s made my day . So happy for you . The stage 4 stats have to be on an upward trend now !!
Hope work is not too bad .
Take care,
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: 5 years ago

Postby susie0915 » Wed Dec 06, 2017 10:17 am

Congrats to you. Are you considered cured now? I thought it was five years from finished treatment, but my oncologist told me it is 5 years from diagnosis. I'm so happy for you.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT
11/17 CEA<.5

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Re: 5 years ago

Postby kiwiinoz » Wed Dec 06, 2017 4:31 pm

Hi Susie

I see my Oncologist in February 2018 which will be 5 years from last resection. I expect him not to mention the cured word and to keep me on some sort of surveillance

Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 March 2017
Port Out 26 March 2015

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Joined: Thu Mar 16, 2017 12:33 pm

Re: 5 years ago

Postby Basil » Wed Dec 06, 2017 8:46 pm

Congrats brother (or sister). That’s a real milestone. Sounds like you’re as cured as you’re ever going to get, and I mean that in a good way.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer S3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17

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Joined: Tue Apr 12, 2011 10:10 pm

Re: 5 years ago

Postby horizon » Wed Dec 06, 2017 10:07 pm

Sending you a virtual high five from across the world!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

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Location: Amsterdam, Netherlands

Re: 5 years ago

Postby LeonW » Thu Dec 07, 2017 5:32 am

Congrats. Best wishes for Feb
Dec 2012 - Dx CC; MM 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) pCR; cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, 2x2017
next: June 2018 w scopy - 5yr getting close

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