5 years ago

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kiwiinoz
Posts: 1099
Joined: Thu Jan 03, 2013 11:44 pm

5 years ago

Postby kiwiinoz » Wed Dec 06, 2017 12:28 am

Hi All

I have officially reached my 5 year mark from diagnosis on 05 December and am pleased to say, that despite a negative diagnosis I am still here and doing well.
Life has changed from thinking about cancer to being at work and struggling to keep work going and having to deal with day to day pressures. Whilst I don't necessarily enjoy those pressures I am pleased to have them as it means I am still here.

To those of you undergoing treatment, keep your chins up as there is always light at the end of the tunnel.

I still love coming to this site as it offered me so much hope and support when I needed it, which is why I keep returning.

Kiwi (still waiting for 5 years from last resection :D )
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 Feb 2018
Port Out 26 March 2015

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CRguy
Posts: 9614
Joined: Sun Feb 10, 2008 6:00 pm

Re: 5 years ago

Postby CRguy » Wed Dec 06, 2017 2:12 am

The drive for FIVE and stayin' alive ...
WORD !

Congrats on the milestone
Keep them coming

Cheers and Harmony
on the Journey with you

CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: 5 years ago

Postby Robino1 » Wed Dec 06, 2017 9:00 am

Congratulations and here's to many more! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

stu
Posts: 848
Joined: Sat Aug 17, 2013 5:46 pm

Re: 5 years ago

Postby stu » Wed Dec 06, 2017 9:44 am

Oh that’s made my day . So happy for you . The stage 4 stats have to be on an upward trend now !!
Hope work is not too bad .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

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susie0915
Posts: 847
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: 5 years ago

Postby susie0915 » Wed Dec 06, 2017 10:17 am

Congrats to you. Are you considered cured now? I thought it was five years from finished treatment, but my oncologist told me it is 5 years from diagnosis. I'm so happy for you.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

kiwiinoz
Posts: 1099
Joined: Thu Jan 03, 2013 11:44 pm

Re: 5 years ago

Postby kiwiinoz » Wed Dec 06, 2017 4:31 pm

Hi Susie

I see my Oncologist in February 2018 which will be 5 years from last resection. I expect him not to mention the cured word and to keep me on some sort of surveillance

Kiwi
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 27 Feb 2018
Port Out 26 March 2015

Basil
Posts: 244
Joined: Thu Mar 16, 2017 12:33 pm

Re: 5 years ago

Postby Basil » Wed Dec 06, 2017 8:46 pm

Congrats brother (or sister). That’s a real milestone. Sounds like you’re as cured as you’re ever going to get, and I mean that in a good way.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer s3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED
1 year scans - clear

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horizon
Posts: 1475
Joined: Tue Apr 12, 2011 10:10 pm

Re: 5 years ago

Postby horizon » Wed Dec 06, 2017 10:07 pm

Sending you a virtual high five from across the world!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 7 years NED). Is this real life?

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LeonW
Posts: 347
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: 5 years ago

Postby LeonW » Thu Dec 07, 2017 5:32 am

Congrats. Best wishes for Feb
L
Dec 2012 CC (7 cm mass), 2 unresect liver mets, CEA 41.8 (MM @65yrs)
Jan 2013 colectomy @ spleen, 2/26 nodes IVa T3N1bM1a MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed PV embolization
Oct 2013 - R liver resect 28 hosp days (delirium, liver failure, emboli, encephalopathy) pCR - no cancer cells
2014/15 - recovery; scopy finds polyp
2016 - new town, new life
June 2018 - 5 yr mark, 2 polyps
clean CTs and (1.3-1.4) CEAs: 4x2014, 6x2015-17, 1x2018; next June 2019

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 5 years ago

Postby DarknessEmbraced » Sat Dec 23, 2017 10:48 am

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

NHMike
Posts: 1723
Joined: Fri Jul 21, 2017 3:43 am

Re: 5 years ago

Postby NHMike » Sat Dec 23, 2017 2:44 pm

Thanks for the good news. One of the other forums that I'm on has had a number of people in the past couple of days with difficult problems and sometimes that's discouraging and the long-term survival stories are a nice counterbalance. I know it's tough out there for a lot of people but there is hope; so nice time of the year for those successes.

As for work: I recall a decade ago when people worried that they didn't have enough work and were worried about layoffs. These days we have the opposite problem - lots of work and not enough people. It will eventually swing back the other way though. I look forward to work as it takes my mind off of cancer.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

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susie0915
Posts: 847
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: 5 years ago

Postby susie0915 » Sat Dec 23, 2017 3:27 pm

NHMike wrote:Thanks for the good news. One of the other forums that I'm on has had a number of people in the past couple of days with difficult problems and sometimes that's discouraging and the long-term survival stories are a nice counterbalance. I know it's tough out there for a lot of people but there is hope; so nice time of the year for those successes.

As for work: I recall a decade ago when people worried that they didn't have enough work and were worried about layoffs. These days we have the opposite problem - lots of work and not enough people. It will eventually swing back the other way though. I look forward to work as it takes my mind off of cancer.

That is the key Mike. Staying busy and distractions from thinking about cancer. It can be tough even after you're finished with treatment. With all the follow up appointments, scans, bloodwork, side effects. I think I am going to volunteer after the first of the year. I don't want to go back to work, but really feel I need to do something productive. Have a nice Christmas.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

LisaMargo
Posts: 21
Joined: Sun Feb 26, 2017 10:26 pm

Re: 5 years ago

Postby LisaMargo » Sat Dec 23, 2017 5:59 pm

Congratulations!
20 feb 17 Went in for a colonoscopy, woke up with cancer
21 feb 17 LAR descending colon, Stage 3c
27 mar 17 port in
29 mar 17: 12 sessions FOLFOX.
51 yo F, married with 3 teenage girls

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: 5 years ago

Postby JDinNC » Tue Dec 26, 2017 2:00 am

Kiwi.....congratulations on your 5 years. You’ve been my hope and encouragement. Feel sure that you have beaten your cancer. .....just don’t let your guard down

what a great way to start a new year.
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED


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