Thank you Lee. Folfori kept me stable just over a year, and now I have a new mass protruding off my sigmoid stump and interfering with my ureter. I will have a Nephrostomy tube out in on Monday to alleviate the stress on my kidney until a stent can be done.
I don’t know what answers I’m seeking here, maybe just looking for hope. I’m scared things might progress quickly now.
Not sure any trial will buy me much time. It seems strange at 36 years old to wait and let cancer ravage my system in due course. I have no liver or lung involvement and Jan 31 will be 4 years from diagnosis.
Like everyone is like a cure so I too can live a long life.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E mutation
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, hysterectomy et al, 2nd temp ileo, NED?
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
Jan/17- pulmonary embolism
Feb/17- 1 wk radiation to abdo wall
Aug/16- on folfiri