5 years Stage IVB and NED again last 6 months!!

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stevieb
Posts: 389
Joined: Sat Feb 09, 2013 12:26 am

5 years Stage IVB and NED again last 6 months!!

Postby stevieb » Mon Dec 04, 2017 1:09 pm

My most recent scan in November revealed that I am still NED after a lung cryoablation in May!! I am currently on ADAPT and doing well and living an almost normal life. Best wishes to all!!!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

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Sophy
Posts: 235
Joined: Fri May 27, 2011 2:46 am
Location: New Zealand

Re: 5 years Stage IVB and NED again last 6 months!!

Postby Sophy » Mon Dec 04, 2017 3:59 pm

Congratulations, that is great news, well done :D
dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
Nov 2017 CT show still NED
Continuing ADAPT

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Robino1
Posts: 227
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: 5 years Stage IVB and NED again last 6 months!!

Postby Robino1 » Mon Dec 04, 2017 4:32 pm

Sweet! Congrats!
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo Stage II
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7; 11/30/17 - 70.7
BRAF V600e mutation :(

tater
Posts: 31
Joined: Wed Jul 19, 2017 5:53 pm

Re: 5 years Stage IVB and NED again last 6 months!!

Postby tater » Mon Dec 04, 2017 4:54 pm

awesome news way to go keep up the good scans.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 17
Stage 4 Liver mets 3(5mm-6mm) and iliac node July 17, 17
FOLFOX + Avistan July 18 CEA 2.3

Deb m
Posts: 358
Joined: Tue Jan 14, 2014 10:08 am

Re: 5 years Stage IVB and NED again last 6 months!!

Postby Deb m » Tue Dec 05, 2017 8:45 am

Wonderful, Merry Christmas!

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LeonW
Posts: 318
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: 5 years Stage IVB and NED again last 6 months!!

Postby LeonW » Tue Dec 05, 2017 10:12 am

Congrats. I think I understand how happy you must be
Leon
Dec 2012 - Dx CC; MM 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) pCR; cancer gone
2014/15 - recovery; benign polyp
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, 2x2017
next: June 2018 w scopy - 5yr getting close

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juliej
Posts: 2748
Joined: Thu Aug 05, 2010 12:59 pm

Re: 5 years Stage IVB and NED again last 6 months!!

Postby juliej » Tue Dec 05, 2017 3:55 pm

Woo-hoo!!! Congratulations from one NED Stage IVB to another!

Why isn't there a "fist bump" emoji?! :D :D :D

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 10/2/2017, CEA<1

AppleTree
Posts: 131
Joined: Fri Mar 18, 2016 8:16 am

Re: 5 years Stage IVB and NED again last 6 months!!

Postby AppleTree » Tue Dec 05, 2017 9:39 pm

So happy for you!
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
March 14 - April 16 - 25 sessions
Tumor shrunk just over 50% Lymph nodes 0/13
Operation to remove rectum with temp Ileo June 17
Reversal July 20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
June 16, MRI shadow in lung
Pet scan - 6.6mm Met in Upper right lobe
July 30 VAT surgery Mass General/Boston
August 24 port installed
August 30 Folfox

User avatar
LPL
Posts: 312
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: 5 years Stage IVB and NED again last 6 months!!

Postby LPL » Wed Dec 06, 2017 4:58 pm

Thank You stevieb for posting !
I is So good to read and I wish you well <3
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets


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