So many problems lately w/computer/wifi. Maybe that time of year, but really irritating, to say the least.
Update on BFF:
Surgery was 12/1.
12/6 (5 days post surgery) Epidural was removed, IV tubes, Dilaudid d/c'd. Pain managed orally, discharged 12/9, by 12/10 off pain meds completely (her choice). She doesn't like how they make her head feel cloudy. 12/12 followup visit w/dr., released to fly home 12/15. two wks post surgery.
Due to the AFIB incident she is on a couple of medications for 30 days to prevent/stabilize that situation. Recommended she followup w/cardiologist upon return home. In addition to the 2 lesions on the liver, 1 in the diaphragm, there were lesions on transverse colon, not penetrating the colon wall. 1 hr. 15 min spent on the diaphragm ("repair") alone. Pathology shows all lesions low grade, Total cancer index = 10. So she was a good candidate for HIPEC.
Two drain tubes, abdomen, upper abdomen. Tube in upper abdomen was the problematic one as epidural didn't reach that area, shoulder pains. Staff would put heat pads on shoulder. Removal of lower abdominal drain tube problematic b/c it had lost flexibility. Required a couple of shots, but still was no picnic. Arms a little black & blue from being poked. Gained some weight (water retention) from surgery that doc says should take care of itself shortly.
She is able to eat eggs, white toast, applesauce, yogurt, cottage cheese, protein drinks, even had salmon...can have oatmeal, soft breads. No nuts, hard breads, fruits w/skin, veggies yet. She walked in the hospital trying to increase day by day & continues walking @ the hotel she is now staying in. Her DH was able to leave & go to a couple of places of interest in San Diego. She mentioned that she was going to need to cut down on the Ducosate for her bowel. That is how well she is doing. She attributes the increased walking program presurgery + all of the walking since surgery to be of great benefit in recovery (I asked). So like AJ said: "Walk, walk, walk, walk."
She called me yesterday & we had a real nice, long conversation of some of the details, little bit of gossip & laughter. She sounds really good.
I asked her what she was thought was most useful in packing to bring along to the hospital. Her loose-fitting sweats & Bed Buddy for use on that shoulder to use @ the hotel. The brand new robe she bought for the hospital was not used until she got to the hotel. Hooked up to too many tubes in the hospital.
Over & over she says UCSD & Dr. Lowy & team have this procedure, aftercare dialed in @ that hospital. She said Dr. Lowy LISTENS, answers all questions, available. Saw him every day @ least once, + his team of docs 2-3 times/day (incl his NP). One entire floor is apparently dedicated to HIPEC cancer patients, cancer patients w/top equipment to handle all situations.
Perhaps AJ can elaborate on this a little more. Not trying to tout USCD whatsoever, however these may be things potential HIPEC candidate may look for in their providers, questions to ask.
BFF & DH took a tour of the hospital floor she would be on during their flight for initial consult.
There are two hospitals that publish their stats that I could find: UCSD & UPMC (Dr. David Bartlett).
Pubmed is a good resource for finding various studies on HIPEC. Also a good way to search authors (if you have a particular doctor in mind). Look for surgeons w/HIPEC experience in the 150 to 200 range. My computer too unstable right now, so quickly:
Some articles I read during HIPEC research links:A contemporary analysis of morbidity and outcomes in cytoreduction/hyperthermic intraperitoneal chemoperfusionhttp://onlinelibrary.wiley.com/doi/10.1002/cam4.80/fullCytoreduction and HIPEC in The Netherlands: Nationwide Long-term Outcome Following the Dutch Protocolhttps://link.springer.com/article/10.12 ... 013-3145-9Oxaliplatin versus Mitomycin C for HIPEC in colorectal cancer peritoneal carcinomatosishttp://www.sciencedirect.com/science/ar ... 8316309295
Interestingly, The Netherlands, unlike USA & most countries w/HIPEC is the only one that established nationwide guidelines for standardized treatment protocol for HIPEC.
OSM: Thanks for the kind words & the citing. From my readings, mcrc PFS not quite as successful as appendicial cancer, however there are many variables.
On a lighter note, her hospital room was voted best decorated by hospital staff. Apparently they enjoyed going into her room. Sons & DH decorated walls w/pics of kids & grandkids, big NANA sign, grandkids writings, drawings, etc.
With BFF's permission, hoping this will be of use to someone here on the forum. As I learn new info will report in for updates.