Would Appreciate Advise

Please feel free to read, share your thoughts, your stories and connect with others!
Posts: 1
Joined: Thu Nov 30, 2017 4:55 pm

Would Appreciate Advise

Postby lcn » Thu Nov 30, 2017 5:34 pm

Sorry in advance if the details of this post are kinda graphic. I'm sure everyone is used to it by now.

I was prescribed opiates for approximately 7 years from 2007-2014. The opiates caused chronic constipation which has extended into the three years since I've been off these drugs. As of late the constipation isn't as pronounced as it was previously but bowel discomfort and fairly intense flatulence have started. All these symptoms are relatively manageable and tolerable if i'm very careful of my diet(lots of veggies, foods that are easy for me to digest etc). On occasion when the constipation does flare up I'll have blood on the toilet paper but never in the stool. The blood usually appears after I've had several small and incomplete bowel movement in one day. This leads me to believe the blood is from excessive wiping rather than internal bleeding. I've recently gone to see a doctor about these symptoms. He says because of the blood a colonoscopy is required. The doctor spent little time asking me about diet, overall health, probiotic intake or any other possible natural, noninvasive remedies for my issues. I'm 30 in otherwise good health. I'll admit, i'm a naturally skeptical and cynical person but I'm concerned that this is an overkill and a moneymaking scheme to some degree. It just seems a bit drastic given my young age and the fact that the symptoms are manageable if i'm careful with my diet. Should I follow the doctors advise or is this an overkill? Any advise/knowledge would be appreciated. Thanks.

Posts: 113
Joined: Sun Dec 14, 2014 5:29 am
Location: MN/FL

Re: Would Appreciate Advise

Postby hawkowl » Fri Dec 01, 2017 1:05 am

Chances are, given your history, the bleeding is not due to a tumor, but there are many of us who wish we were not so quick to dismiss our rectal bleeding as something trivial or benign. If you were my family member, i would want you to have the colonoscopy.
Dx 12/2014 T3N2MX (iliac nodes) low rectal
12/2014-4/2015: FOLFOX (8 cycles)
4/2015-6/2015: 28 cycles of chemoradiation with xeloda
8/2015: Robotic APR with iliac node dissection; path showed ypT0,ypN0 (complete pathological response).
11/2015 scans clear, CEA 2.1
11/2015 parastomal hernia repair
3/2016 CEA 1.7
10/2017 CEA remains in normal range (1.4), scans stable.
6/2018 CEA still normal.

Totally disabled due to oxaliplatin induced neuropathy and dysautonomia

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Colonoscopy - What to expect

Postby O Stoma Mia » Fri Dec 01, 2017 3:41 am

I agree with what Hawkowl said. If you have a doctor willing to approve a colonoscopy, then I think you should go for it. If nothing else, it will set your mind at ease after you know what is really going on.

ocstacy wrote:... I had to argue with 3 Dr. to get my colonoscopy approved so that my insurance could pay...

Colonoscopy - What to Expect
10 Questions You Need to Ask About Colonoscopy
Frequently Asked Questions About Colonoscopy and Sigmoidoscopy
Colonoscopy preparation guide UnivMich
Frequently Asked Questions about Colonoscopy
Common Colonoscopy Questions... Answered!
Ask About The Quality Of Your Colonoscopy It Matters
Sample colonoscopy prep instructions

Colonoscopy Prep Solutions
Last edited by O Stoma Mia on Sun Dec 03, 2017 3:34 am, edited 1 time in total.

Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Would Appreciate Advise

Postby DarknessEmbraced » Sat Dec 02, 2017 1:04 pm

I agree best to have a colonoscopy to find out the reason for the bleeding.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Posts: 5680
Joined: Sun Apr 16, 2006 4:09 pm

Re: Would Appreciate Advise

Postby Lee » Sun Dec 03, 2017 6:06 pm

I am grateful to my Dr for advising me to get a colonoscopy. I had bleeding hemorrhoids, PCP saw them and confirmed it. Every test that should have been a warning flag for colon cancer came back negative or normal. When all was said and done, my PCP figured those bleeding hemorrhoids would be my excuse for getting my baseline colonoscopy early in life.

My signature line tells the rest of story. Truth be know, anytime there is rectal bleeding, a colonoscopy should be done (regardless of age) for a true diagnoses, anything else is just a speculation.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Posts: 263
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: Would Appreciate Advise

Postby ocstacy » Mon Dec 04, 2017 2:36 am

I agree best to have a colonoscopy to find out the reason for the bleeding.*hugs*

It was the best thing that I could ever do for myself and give me "Peace of Mind". Mom got DX last May with rectal cancer. It was a huge surprise to everyone nobody on her side of family had CA. I had to fight for a colonoscopy between my general and 2nd opinion. When I told her that I had blood in my bm the 2nd time I saw her and my mom's DX, she finally referred me to the GI. I think it's cause I went in for a 2nd opinion.. but it was really the 2nd Dr who gave me permission to see the GI, not my general. I ended up having a benign polyp but I will never forget back in 2014 when I was attending college full time and working two jobs, I was under a ton of stress. I was working 10 hour shifts as a newborn specialist a few times a week and teaching preschool, and attending 5 classes. I have no idea how I survived BUTT I did. i had the worst hemmoroids to where I had to carry a doughnut with me to school to sit on. I ended up getting a fungal infection, it was horrible! I didn't have medical insurance and it got so bad that I had to treat myself to OTC meds. Then, I had what I thought was a thrombosis but I thought my hemmy was going to burst open.. my pain level was so bad I had take narcotics. ER dr. stuck his finger up my you know what and I cried so hard. I seriously thought at that point I had some kind of problem like CA. I was very nervous to get a colonoscopy BUTT glad I got it done with and over. I just have enternal/external hemmy's which I can now control with stool softeners, tucks pads, and my proctozone cream. I can't live without those products after having a 9 pd 4 oz baby. I am thankful for this board.
Caregiver/daughter to dear mother age 78, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low-grade adenocarcinoma- 6 cm
Neoadjuvant start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 hospitalized abscess/hernia - home 11/06/17 antibiotics
Took her last chemo med 05/10/18! Ileo reversal 07/24/18
1st BM after reversal 07/25/18 Anal Fissure 8/15/18
Me:1st Colonoscopy age 38. 08/17 Benign polp.

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”

Who is online

Users browsing this forum: Cured, erins, Google [Bot] and 44 guests