5 years cancer anniversary - NED!

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ab123
Posts: 117
Joined: Tue May 21, 2013 12:25 pm
Location: Boston

5 years cancer anniversary - NED!

Postby ab123 » Mon Nov 27, 2017 2:58 pm

Today is exactly 5 years since my LAR surgery for stage IIIC CRC. I've mostly adapted to the increase in bathroom visits by now (usually fine if I eat right), and almost forgotten that my feet feel different ever since the Oxaliplatin. On the whole I'm back to normal and have been for years now. To all of you recently diagnosed and freaking out, know that you can make it through. Sharing stories here and everywhere else is a powerful way to help each other and to take control in a process where it's easy to feel powerless. I am grateful to everyone on this board for helping me and all of us to be empowered.
Last edited by ab123 on Mon Nov 27, 2017 3:49 pm, edited 1 time in total.
Aug 2012: RC DX Stage IIIC, T3N2M0 by MRI - 38M
Fall 2012: Chemorad
Nov 2012: LAR - Path report: 0/13 LNs, tumor reduced to "microscopic foci"
Jan-Apr 2013: 8 rounds FOLFOX
May 2013: Ileostomy takedown, port removal
July 2013 (and since): NED!

Ampes
Posts: 13
Joined: Wed Sep 20, 2017 6:14 am

Re: 5 years cancer anniversary - NED!

Postby Ampes » Mon Nov 27, 2017 2:59 pm

Congrats!!
DH diagnosed 9/17 57 yrs
CRC ascending 7x3 cm tumor
T3N0M0 stage 2A well differentiated MSS
LAR right hemicolectomy 10/11/17 clear margins

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juliej
Posts: 2822
Joined: Thu Aug 05, 2010 12:59 pm

Re: 5 years cancer anniversary - NED!

Postby juliej » Mon Nov 27, 2017 7:24 pm

Halle-frickin'-lujah! :D :D :D It sounds like you are definitely looking at cancer in the rear-view mirror now.

Congratulations! And thanks for sharing!
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 5/11/2018, CEA<1

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Robino1
Posts: 451
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: 5 years cancer anniversary - NED!

Postby Robino1 » Mon Nov 27, 2017 7:42 pm

A huge congratulations!! :mrgreen:
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

fumaros
Posts: 231
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: 5 years cancer anniversary - NED!

Postby fumaros » Tue Nov 28, 2017 11:26 am

5 years is the mark for being cured, right. Congratulations. This is a big anniversary. Enjoy life.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

Thetoad
Posts: 158
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: 5 years cancer anniversary - NED!

Postby Thetoad » Tue Nov 28, 2017 4:52 pm

Great news! Encouraging for others as well. I'm 4 years and 15 days. Trying not to count but it's difficult.
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Now on yearly appts and 6 monthly CEA tests.
Incisional hernia repair with mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open surgery.
Pleasing consultation Feb. 2017
CEA 1.7 on 16/11/17
Clear colonoscopy Jan. 2018 :)
Colorectal nurse pleased, March 2018. Latest CEA 1.8. One more CEA test and hopefully last appt in November, 2018.

Ron50
Posts: 654
Joined: Fri Feb 10, 2006 7:04 pm

Re: 5 years cancer anniversary - NED!

Postby Ron50 » Wed Nov 29, 2017 6:31 am

Hi ab,
Congratulations on the 5 yrs, wishing you a long and ca free life. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

DarknessEmbraced
Posts: 3010
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 5 years cancer anniversary - NED!

Postby DarknessEmbraced » Wed Nov 29, 2017 5:26 pm

Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Thetoad
Posts: 158
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: 5 years cancer anniversary - NED!

Postby Thetoad » Mon Feb 19, 2018 3:22 am

Thetoad wrote:Great news! Encouraging for others as well. I'm 4 years and 15 days. Trying not to count but it's difficult.

Feb. 19th. Just passed 51 months. Colorectal nurse pleased today. Recent colonoscopy normal and no more! Two more CEA tests and hopefully last appt with nurse in Nov.
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Now on yearly appts and 6 monthly CEA tests.
Incisional hernia repair with mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open surgery.
Pleasing consultation Feb. 2017
CEA 1.7 on 16/11/17
Clear colonoscopy Jan. 2018 :)
Colorectal nurse pleased, March 2018. Latest CEA 1.8. One more CEA test and hopefully last appt in November, 2018.

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horizon
Posts: 1461
Joined: Tue Apr 12, 2011 10:10 pm

Re: 5 years cancer anniversary - NED!

Postby horizon » Mon Feb 19, 2018 9:15 am

That's a huge milestone. Congrats!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

mariane
Posts: 618
Joined: Sun Sep 13, 2015 6:16 pm

Re: 5 years cancer anniversary - NED!

Postby mariane » Mon Feb 19, 2018 12:35 pm

Congratulations!!!! :) Thank you for posting!
mom of now 9 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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