tiny white spots on ileostomy

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Chickspeed
Posts: 43
Joined: Sat Jun 17, 2017 5:16 am

tiny white spots on ileostomy

Postby Chickspeed » Sat Nov 25, 2017 12:20 pm

I have a couple little tiny white spots on my stoma.

Thoughts?
12/15/2016 Mod Diff tumour 5-6 cm 10-12 cm fr AV T3 tumour cea 1.4
12/29/2016 CT no spread ln normal
1/19/2017 MRI confirms mass and shows 3 enlarged LN (suspected to be infection draining)
3/6/2017 25 sessions chemoradiation
6/20/2017 LAR with temp loop ileo
7/10/2017 Path 20mm margins tumour 0.1 CM with microscopic invasion of submucosa
aug-dec 2017 6 rnds xeloda
1/9/2018 CT all clear
1/18/2018 Colonoscopy clear
3/27/2018 ileo reversal
CEA continues to be normal

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: tiny white spots on ileostomy

Postby Lee » Sat Nov 25, 2017 4:20 pm

I had a few soon after my surgery, can't remember what there were. So long ago. Surgeon put something on them and they went away. What ever was put on my stoma did not hurt. When do you see your surgeon next? Mine was during a routine follow up from my surgery.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: tiny white spots on ileostomy

Postby NHMike » Sat Nov 25, 2017 4:45 pm

I haven't seen these on mine but I would have difficulty looking at them. I think that I'd only see them if I took a picture of them perpendicular to me. But my life does the lining up of the wafer for me and she likely would have mentioned something like that to me.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: tiny white spots on ileostomy

Postby Aqx99 » Sat Nov 25, 2017 5:09 pm

Chickspeed wrote:I have a couple little tiny white spots on my stoma.

Thoughts?


When was your surgery? I had some white spots on my stoma not long after surgery that turned out to be dead skin cells that eventually sloughed off. There is also always the chance that it is some sort of infection, you might want to check it out with your surgeon.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

MissMolly
Posts: 645
Joined: Wed Jun 03, 2015 4:33 pm
Location: Portland, Ore

Re: tiny white spots on ileostomy

Postby MissMolly » Sat Nov 25, 2017 5:43 pm

Chickspeed:
Yeast and fungal overgrowth is a common finding with an ileostomy. Yeast and fungal overgrowth often appears as tiny, dispersed white spots on the stoma itself as well as the perimeter of skin surrounding the stoma (peristomal skin).

Yeast and fungal overgrowth occurs because the ostomy wafer traps moisture from simple perspiration. The warmth of the body + retained moisture = a welcoming environment for yeast and fungus.

The fungal and yeast overgrowth is the same as Athlete’s foot.

Treatment for stomal yeast/fungus is Nyastin powder. You will need to ask your physician for a prescription of Nyastin powder. You should experience relief within 1-2 applications of Nyastin powder.

Homeopathic treatment with a plant called Violet Purple also has good results. Violet purple is in class/family of cactus and it is from the plant’s leaves/needles that a treating liquid is extracted. A holistic pharmacy would be able to direct you to Violet Purple. Beware as the extracted liquid is purple in color and does stain the skin and clothing a dark hue of purple.
Karen
Dear friend to Bella Piazza, former Colon Club member (NWGirl).
I have a permanent ileostomy and offer advice on living with an ostomy - in loving remembrance of Bella
I am on Palliative Care for broad endocrine failure + Addison's disease + osteonecrosis of both hips/jaw + immunosuppression. I live a simple life due to frail health.

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: tiny white spots on ileostomy

Postby Lee » Sat Nov 25, 2017 6:17 pm

I've been told yeast infection, jock itch and athlete's foot are all the same fungus. I got athlete's foot in high school, suspect I picked it up in the girls shower.

Yes I did develop a yeast infection around my stoma site soon after surgery. My Ostomy nurse recommends Micro-Guard Powder. Antifungal Powder with Miconazole Nitrate 2%.

I showed my surgeon the effected area, she recommend some oil based product :shock: My Onc recommend some other oil based product :shock: Ostomy nurse told never use oil based product around the stoma site as it prevents the wafer from sticking well. Yes, I realized that early on, butt it was better than trying scratching the wafer off due to all the itchiness. Anyway the above product gave me instant relief. Took the bottle home with me.

Lee

Edited to add, this product is made by Coloplast
Last edited by Lee on Sat Nov 25, 2017 6:23 pm, edited 1 time in total.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: tiny white spots on ileostomy

Postby NHMike » Sat Nov 25, 2017 6:18 pm

Thanks for that. I'll stow it away for future use.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Chickspeed
Posts: 43
Joined: Sat Jun 17, 2017 5:16 am

Re: tiny white spots on ileostomy

Postby Chickspeed » Sun Nov 26, 2017 2:29 am

Aqx99 wrote:When was your surgery? I had some white spots on my stoma not long after surgery that turned out to be dead skin cells that eventually sloughed off. There is also always the chance that it is some sort of infection, you might want to check it out with your surgeon.


Surgery was June 20th. Reversal pending Mid march. I have 1 round of capecitabine (AKA xeloda) Left that
should start Dec 1st. I have had trouble with leaks around my stoma since day 1. I tried a sample barrier ring monday called
eakin. it allowed me to keep the appliance on 4 days as opposed to the usual 2 days. I wonder if that had anything to do with it.
12/15/2016 Mod Diff tumour 5-6 cm 10-12 cm fr AV T3 tumour cea 1.4
12/29/2016 CT no spread ln normal
1/19/2017 MRI confirms mass and shows 3 enlarged LN (suspected to be infection draining)
3/6/2017 25 sessions chemoradiation
6/20/2017 LAR with temp loop ileo
7/10/2017 Path 20mm margins tumour 0.1 CM with microscopic invasion of submucosa
aug-dec 2017 6 rnds xeloda
1/9/2018 CT all clear
1/18/2018 Colonoscopy clear
3/27/2018 ileo reversal
CEA continues to be normal

Chickspeed
Posts: 43
Joined: Sat Jun 17, 2017 5:16 am

Re: tiny white spots on ileostomy

Postby Chickspeed » Sun Nov 26, 2017 2:39 am

MissMolly and Lee thank you for your input you both make a lot of sense. I have no itching or discomfort as a result. I will be watching
things closely for a few days.

I also wondered now in hindsight if it may be stoma powder sometimes i am sloppy at changing my appliance sometimes the powder is difficult to remove between changes once it gets wet.

thanks
12/15/2016 Mod Diff tumour 5-6 cm 10-12 cm fr AV T3 tumour cea 1.4
12/29/2016 CT no spread ln normal
1/19/2017 MRI confirms mass and shows 3 enlarged LN (suspected to be infection draining)
3/6/2017 25 sessions chemoradiation
6/20/2017 LAR with temp loop ileo
7/10/2017 Path 20mm margins tumour 0.1 CM with microscopic invasion of submucosa
aug-dec 2017 6 rnds xeloda
1/9/2018 CT all clear
1/18/2018 Colonoscopy clear
3/27/2018 ileo reversal
CEA continues to be normal


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