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Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Fri Nov 24, 2017 5:25 pm
by dianetavegia
My CEA was 5.8 early November so my onc ordered CT of my chest, MRI of abdomen and MRI of pelvic area. Everything was as it has been for 9 years. Pelvic area was 'pristine'.

My TSH was double the high norm so I began thyroid meds six days ago. It can take 4 to 5 weeks to start working and 4 to 9 months AFTER normalizing the thyroid to see the CEA begin to drop. Of course, I'm praying it was my thyroid or the horrible, horrible sinus infection I'd had for almost 10 weeks when I had my CEA done. I'd had a steroid shot and two weeks worth of antibiotics but was still ill a week later when the test was done. Numerous medical papers show CEA is elevated in people with thyroid problems! Even my onc had no idea, yet the paper said EVERY CEA spike should include a TSH unless there is a good reason to suspect a recurrence.

Anyhow,
According to my onc, I remain NED/ likely cured 9 years after my original Stage IIIB dx and 5 years 7 months post my liver resection (w/o follow up chemo after HP). My Pastor said this was a scary test of faith but I was able to make it through the waiting time with almost zero anxiety. That, in itself, is a miracle.

Still praising the LORD!
Diane

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Fri Nov 24, 2017 6:52 pm
by TXLiz
Wonderful news. Enjoy the upcoming holiday season!

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Sat Nov 25, 2017 9:27 am
by jhocno197
Very happy for you!

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Sat Nov 25, 2017 11:19 pm
by testing765
You got an early Christmas present :-)

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Sat Nov 25, 2017 11:59 pm
by pantufla
I'm so happy for you. Congrats.

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Sun Nov 26, 2017 5:26 pm
by Lee
dianetavegia wrote: . . . According to my onc, I remain NED/ likely cured 9 years after my original Stage IIIB dx . . .
Diane


That is TOTALLY AWESOME!

Congratulations and enjoy the holidays,

Lee

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Mon Nov 27, 2017 10:58 am
by jortego128
Great news Diane!! I hope you have a blessed Christmas season!

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Mon Nov 27, 2017 11:06 am
by mariane
Congratulations!

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Mon Nov 27, 2017 11:08 am
by sadysue
Good for you, Diane, you are fighting a good fight :-) and you are winning! Wishing you continued peace and many blessings.
Mary Ann

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Mon Nov 27, 2017 8:33 pm
by DBF
Great news. I've been thinking about you, hoping everything was okay.

I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it all came out good.

Seems with CEA rises, obstructions, adhesions, etc., there are a lot of bullets to dodge, but NED is NED, and "cured" looming in the not so far distance sure feels great. :)

Hope you had a happy Thanksgiving!

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Wed Nov 29, 2017 5:31 pm
by DarknessEmbraced
Congratulations!*hugs*

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Thu Nov 30, 2017 6:21 pm
by nbrandt
Happy to hear the great news. Have a Blessed Christmas.

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Thu Nov 30, 2017 7:04 pm
by Joannerogers
Fabulous! Congratulations!!!

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Thu Nov 30, 2017 7:33 pm
by NedPlease
SUPER!!!!

N

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Posted: Mon Dec 04, 2017 12:52 pm
by fumaros
Congratulations Diane! I was a bit worried for you. I am so glad it was just a scare and you preserved and kept your faith.