Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

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dianetavegia
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Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby dianetavegia » Fri Nov 24, 2017 5:25 pm

My CEA was 5.8 early November so my onc ordered CT of my chest, MRI of abdomen and MRI of pelvic area. Everything was as it has been for 9 years. Pelvic area was 'pristine'.

My TSH was double the high norm so I began thyroid meds six days ago. It can take 4 to 5 weeks to start working and 4 to 9 months AFTER normalizing the thyroid to see the CEA begin to drop. Of course, I'm praying it was my thyroid or the horrible, horrible sinus infection I'd had for almost 10 weeks when I had my CEA done. I'd had a steroid shot and two weeks worth of antibiotics but was still ill a week later when the test was done. Numerous medical papers show CEA is elevated in people with thyroid problems! Even my onc had no idea, yet the paper said EVERY CEA spike should include a TSH unless there is a good reason to suspect a recurrence.

Anyhow,
According to my onc, I remain NED/ likely cured 9 years after my original Stage IIIB dx and 5 years 7 months post my liver resection (w/o follow up chemo after HP). My Pastor said this was a scary test of faith but I was able to make it through the waiting time with almost zero anxiety. That, in itself, is a miracle.

Still praising the LORD!
Diane
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 11 months since original dx. Five yrs. 7 months post liver resection. NED November 2017!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

TXLiz
Posts: 228
Joined: Thu Sep 22, 2016 3:31 pm

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby TXLiz » Fri Nov 24, 2017 6:52 pm

Wonderful news. Enjoy the upcoming holiday season!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

jhocno197
Posts: 811
Joined: Mon May 11, 2015 9:33 pm

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby jhocno197 » Sat Nov 25, 2017 9:27 am

Very happy for you!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

testing765
Posts: 309
Joined: Tue Aug 19, 2014 9:41 am

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby testing765 » Sat Nov 25, 2017 11:19 pm

You got an early Christmas present :-)
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

pantufla
Posts: 118
Joined: Thu Dec 03, 2015 12:44 pm
Facebook Username: kelleykulina

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby pantufla » Sat Nov 25, 2017 11:59 pm

I'm so happy for you. Congrats.
DH T2 N1b M0. 3/15 positive nodes.
Stage IIIA moderately differentiated adenocarcinoma.
Tumor size 6 cm.
Left hemicolectomy 10/26/15.
FOLFOX 11/30/15 to 5/2/16, full 12 cycles.
Lynch negative.
10/3/16 CT scan clear.
11/10/17 CT: "Focal opacity along the left lower lung, 7 mm. Two small peripheral opacities along the right lower lobe, 2 to 3 mm. A few small to mildly prominent left-sided central mesenteric nodes, up to 13 mm. There are subcentimeter retroperitoneal lymph nodes."
CEA 0.5

Lee
Posts: 5297
Joined: Sun Apr 16, 2006 4:09 pm

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby Lee » Sun Nov 26, 2017 5:26 pm

dianetavegia wrote: . . . According to my onc, I remain NED/ likely cured 9 years after my original Stage IIIB dx . . .
Diane


That is TOTALLY AWESOME!

Congratulations and enjoy the holidays,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

jortego128
Posts: 275
Joined: Sat Aug 15, 2015 7:47 am

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby jortego128 » Mon Nov 27, 2017 10:58 am

Great news Diane!! I hope you have a blessed Christmas season!
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

mariane
Posts: 580
Joined: Sun Sep 13, 2015 6:16 pm

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby mariane » Mon Nov 27, 2017 11:06 am

Congratulations!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

sadysue
Posts: 974
Joined: Tue Aug 02, 2011 6:59 pm
Location: Charleston, TN

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby sadysue » Mon Nov 27, 2017 11:08 am

Good for you, Diane, you are fighting a good fight :-) and you are winning! Wishing you continued peace and many blessings.
Mary Ann
Rectal dx 4/2011 (Stage 3B - T3N1M0)
5FU/Rad - daily/6 wks ending 6/2011
Surgery 8/19/2011
Finished 8 rounds Folfox 2/2012
Ileo reverse and port out 3/2012
NED

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DBF
Posts: 291
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Location: New York

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby DBF » Mon Nov 27, 2017 8:33 pm

Great news. I've been thinking about you, hoping everything was okay.

I recently had a scare too: a PET with uptake in the caudate lobe of the liver. I subsequently had an abdominal surgery, and along with removing a ton of scar tissue, my surgeon also took a look at my liver, did a biopsy, and it all came out good.

Seems with CEA rises, obstructions, adhesions, etc., there are a lot of bullets to dodge, but NED is NED, and "cured" looming in the not so far distance sure feels great. :)

Hope you had a happy Thanksgiving!
6/13 Dx @ 29 Wks pregnant, 42 yo
7/13 C-sec/col resec/part hyster.
8/13 Pulm embolism
8/13 Liv met
9/13 Liv resect
FOLFOX
2/14 part hyster.
10/15 obstruction surg
NED :D
ADAPT: Xel/Cel
Latest clear scan: 2/17
Mom to 3 boys: 19, 8 & 4

DarknessEmbraced
Posts: 2849
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby DarknessEmbraced » Wed Nov 29, 2017 5:31 pm

Congratulations!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

nbrandt
Posts: 471
Joined: Sun May 01, 2011 7:42 pm
Facebook Username: craig.brandt

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby nbrandt » Thu Nov 30, 2017 6:21 pm

Happy to hear the great news. Have a Blessed Christmas.
DXCCT3N2aMx 5/20LN
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health

Joannerogers
Posts: 250
Joined: Tue Jun 16, 2015 4:50 pm

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby Joannerogers » Thu Nov 30, 2017 7:04 pm

Fabulous! Congratulations!!!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

NedPlease
Posts: 525
Joined: Fri Mar 23, 2012 3:56 pm

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby NedPlease » Thu Nov 30, 2017 7:33 pm

SUPER!!!!

N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 7/17 Clear Scans
Today- NED

fumaros
Posts: 218
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: Scans all normal/ NED 9 yrs post dx, etc. Stage IVa

Postby fumaros » Mon Dec 04, 2017 12:52 pm

Congratulations Diane! I was a bit worried for you. I am so glad it was just a scare and you preserved and kept your faith.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED


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