Zig2017 wrote:...He’s already weak and doesn’t move around much. It’s these nodules that are popping up everywhere.... it seems the nodes are kind of stable but the nodules are growing in different places and there’s more of them.
For us, what happened with the distant lymph nodes is that they would blow up, one by one, from small mm's to about +- 2 cm +-0.3 cm in under 2 weeks, maybe stably sized by chemo dose (e.g. first, smallest closest to inlet, largest furtherest on the drainage - don't know for sure).
Elevated CA19-9 often is associated with metastatic nodes. In our particular experience, the CA19-9 rise (at an inadequate chemo level) was later than the nodes' expansion and discreet CEA jumps, like a subsequent stem cell "infection". The CA199 rises were still fast and then first to stop and drop on an adequate dose of
(non standard) anti-mutant components
. The thing was that CA19-9 was actually easiest on 5FU+IVC
+everything to control when we had a somewhat mutant killing formula, CA19-9 going from peak to baseline in ~6 weeks, but we couldn't reduce CEA level with this earlier formulation. These ~15 metastatic nodes were all in a single site, still usually considered inoperable (refused by most surgeons), removed with a "salvage surgery" 6+ years ago. Later, adding celecoxib and bigger D3 to our entire immuno 5FU formula- we flattened small CEA rises. I am concerned that the fluid drainage of an IV vitamin C, an anti-mutant component, might be a problem but IV C has been used as a diuretic tx. Also IV vitamin C and some kinds of supplements are often a literal pick-me-up for cancer patients. e.g. a bedridden patient plays golf the next day for one good day.
An earlier Olymphian member, Blake (Buckwirth), battling full blown lymph node mets got some relief and time going back to Folfox that he "had not yet exhausted" previously but it was a rough time
. Our response was add more oral 5FU-LV (tamed the side effects at lower dose) and add other nicer, off-label stuff for the mutants, swing for the fence. Regular oncology often tries Folfoxfiri+Avastin maybe +gemcitabine too, for some overtime. The central technical problems are QoL while turning 5FU "on" with enough stuff, and the mutants "off".