Zig2017 wrote:Well.... it hit the fan last night. I came home and Ziggy had thrown up eight or nine times. Then he tells me he gets nauseous if he twists to get something or crosses his legs or bends over. Weak, so I call his nurse at Sloan. Today was going to be treatment but instead a bag of fluid to hydrate. Plus CT scan. Progression in peritoneal and retroperitoneal. Nurse in doctors office also said increased disease in pelvis starting to obstruct lower ureter. He can pee though. Lungs are questionable now too. I think she felt bad calling...
Onward. We go to Irinotecan and maybe 5FU not sure calling doctor at 10:00 am tomorrow for consult back to Basking Ridge Sloan campus Thursday.
As ive said before. This cancer is Einstein level. Figured out how to mutate itself to survive these drugs. Never saw anything like it. Maybe Irinotecan is the answer. We’ll see! We are off the trial.
Zig2017 wrote:Thanks Robino I wish the best for you as well. I will keep the post up with what’s happening S/E wise and any reports of how Mr. Ziggy is responding. I want to help others out there who might have this BRAFV600e mutation. I’m beyond thrilled your chemo is working!
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