Welcome Alessandra! Sorry I’ve been MIA for a couple of days, I wanted to see first how Mr Ziggy is responding to meds. Alessandra that is an awesome combo and I’m beyond thrilled it’s working!! Keep it going!
Mr. Ziggy takes 3 of the BINI and 4 of the ENCO drugs in the morning, symptoms are being a little whoozy but by afternoon he’s ok. He takes 3 of the BINI at 9:45 at night, there’s a 10-14 hour time frame with these drugs so he is on a schedule. He goes for his Cetuximab infusion on Monday at Basking Ridge location. Outside of the first day with some vomiting, he’s been ok on it. It’s a matter of tweaking his meds for nausea, heartburn, etc. we are getting there on those. A little more loose stool, but he’s eating ok and taking smaller, more frequent meals. We go for another CT in January to see response. I want to add that one of the drugs can cause skin rash, so oncologist prescribed an antibiotic to take prophylacticly to avoid it. Also very dry skin so drinking more water. In the meantime, he’s got more tumor burden, with sub-cutaneous mets on stomach area that can be felt. Also on scalp. Hopefully this knocks it back quickly, but drugs take time to work. He’s been a real trooper in all of this. I will say so far Sloan has been excellent in his care, and I’m glad we’ve gotten on the trial. Strict protocol for a trial obviously and it is a commitment. Blessings to all, and more to follow! My love to all, Mrs Ziggy.
Hubby stage 3C June 2017
MSS BRAF Mutation
18 LN positive
11/08/17 numerous nodules and lymph nodes throughout chest and abdomen. Stage IV.
11/2017 moved care to Sloan clinical trial for BRAF mutation