We had our follow up with oncologist yesterday. Bottom line is even though tumor markers dropped a lot, tests showed mixed bag. He looks good on paper, but the scans show new growth, stability in other areas. We will plug along for another month and if he still doesn’t show improvement, we will be moving on to Irinotecan with whatever else she feels would be appropriate. She doesnt want to risk him progressing if it’s not working well for him. She was saying maybe some of it doesn’t rely on EGFR, but maybe another pathway. Of course for an oncologist I’m sure it’s like looking for a needle in a haystack, so they have to try different things to find what works for each person. I’m hopeful we’ll get there, but the oncologist said he should be feeling good if it was working because tumor burden would be less and he’d have more energy, and he really feels so poorly. He is dizzy now too, lots of nausea difficult to feed him and he sleeps on average about 15 hours a day. Up for an hour or two, sleeping 3, etc. He tries to walk around but wiped out after that and sleeping. Only wants me around, doesn’t want to go out or socialize, it’s too tiring. Of course he is depressed too, so Ativan and compazine. We’ll see. Next three treatments at Basking Ridge location.
Hubby stage 3C June 2017
MSS BRAF Mutation
18 LN positive
11/08/17 numerous nodules and lymph nodes throughout chest and abdomen. Stage IV.
11/2017 moved care to Sloan clinical trial for BRAF mutation
1/30/18 off clinical trial
2/2/18 one dose of Irinotecan
2/5/18 Hospitalization and hospice
2/16/18 came home from hospital and went home to his Lord at 1:10 pm