Mrs. Z, Sending you hugs and prayers. Am at a loss for words. Well, I will say do what feels right for you and for him, that's all that matters.
As far as scheduling goes, DH has blood work on Friday or Saturday, maybe Monday, at a local lab; results are ready either the day before treatment or the morning of. We usually leave the house at 6:30 to see the Dr at 8, followed by treatment at 9:15, done by 1:30. This new scheduling protocol only allows for a certain number of patients per nurse at a time which means fewer appointments. The Dr only allows treatment to be booked for the next time once DH has started the current day. By the time I got to the scheduler to get his March 6 treatment booked, the only slot available was 11:45. I don't know if it's staffing cuts or what. I talked to the scheduler again today and she kept saying it's the new computer program. I fussed at the head lady yesterday. But I also found out some Dr's allow for more future scheduling so that's what I've asked for. We'll see...
Please take care,
Caregiver to DH, dx age 50, mets to liver/lungs, MSS, quad wild
10/16: descending hemicolectomy w/perm. colostomy, CEA 114
11/16: port in, FOLFOX + Avastin; CEA down to 11 by 4/17
6/17: CEA 15, OX discontinued for now due to neuropathy
11/17: CEA 38, changed to CAPOX+A; CEA down to 29 in 12/17
1/18: scan stable, CAPOX caused bilirubin of 4.5/bad hfs, back to FOLFOX+A
5/18: scan shows growth of liver tumors/lung nodes; 6.4 bilirubin too high for irinitican, started Vectibex