New here- full colectomy recommended by surgeon- any advice?

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RobinD
Posts: 2
Joined: Fri Nov 17, 2017 1:38 pm

New here- full colectomy recommended by surgeon- any advice?

Postby RobinD » Tue Nov 21, 2017 8:26 am

Hi all- very glad to have found this forum! I was dignosed by colonoscopy on 11/3/17. I have a large tumor where the cecum and ascending colon meet. I have two other suspicious polyps, one in transverse, one in descending. My board-certified surgeon is saying full colectomy. Have any of you had a full colectomy and what is it like living without a colon? Conversely, have any of you had multiple polyps and kept part of your colon? Thanks. Robin

Utwo
Posts: 145
Joined: Mon May 23, 2016 10:14 am
Location: T.O.

Re: New here- full colectomy recommended by surgeon- any advice?

Postby Utwo » Tue Nov 21, 2017 12:51 pm

What are dimensions of all your polyps?

I had three polyps with large one in caecum (similar to what you have).
All of them were removed during colonoscopy.
Afterwards right hemicolectomy was performed for "prophylactic purposes".

I would recommend to get a 2nd opinion - find and talk to a colonoscopy expert.
In my case 1st GI surgeon was able to remove 2 small polyps during my 1st colonoscopy and referred me to another guy (who was doing only colonoscopy/gastroscopy and nothing else) for removal of a bigger sessile polyp.
58 yo male at diagnosis - T1bN0, 0/15 lymph nodes, low grade/moderately differentiated adenocarcinoma
03/2016 colonoscopy #1: 2 small polyps removed in left colon; CEA = 1.3
04/2016 colonoscopy #2: caecum sessile 3.5 cm polyp piecemeal removed with kind of clear margins
05/2016 CT scan, blood test ...
05/2016 "prophylactic" laparoscopic right hemicolectomy with a few complications (bleeding, leak, infection)
06/2017 CT scan, colonoscopy OK; CEA = 1.6

Deb m
Posts: 358
Joined: Tue Jan 14, 2014 10:08 am

Re: New here- full colectomy recommended by surgeon- any advice?

Postby Deb m » Tue Nov 21, 2017 1:08 pm

My husbands main tumor was also in his cecum. He had his cecum, ascending colon and appendix removed along with 24 lymph nodes. He also had a polyp in his transverse colon which was NOT positive for cancer and was removed during the colonoscopy.

I agree with getting a second opinion from a MAJOR cancer center. I'm not sure if removing your entire colon is over kill or not. Are you lynch positive?


Debbie

rockhound
Posts: 55
Joined: Fri Jul 14, 2017 5:00 pm

Re: New here- full colectomy recommended by surgeon- any advice?

Postby rockhound » Tue Nov 21, 2017 1:40 pm

I considered it due to Lynch positive diagnosis, but surgeon basically talked me out because of quality of life issues... I figure (and his point) was that it could always be something I could do in the future. I'm glad I did not but would be ok if I need to in future.
42 yr old male
Diagnosed December 2016, age 41
Stage 1/IIA rectal cancer - T2/3N0M0 via MRI (MRI indicates stage 1; onc/surgeon = stage 2a)
Lynch syndrome, MSH6 mutation, MSI-H
2 to 3/2017 Xeloda + Radiation
5/10/17 - Robotic LAR with temp. loop illeostomy, 0/20 lymph nodes
6 to 7/2017 - Six cycles Folfox @ full strength
9/20/17 - Ileostomy takedown
10/17 - Clear CT

User avatar
chrisca
Posts: 225
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: New here- full colectomy recommended by surgeon- any advice?

Postby chrisca » Tue Nov 21, 2017 3:35 pm

Second opinion definitely called for. Surgeons can neglect long-term quality of life consequences when they don't consider the individual patient's situation carefully. If you feel like you're being treated like a statistic, find a doctor who treats the person, not the disease.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 6 years

RobinD
Posts: 2
Joined: Fri Nov 17, 2017 1:38 pm

Re: New here- full colectomy recommended by surgeon- any advice?

Postby RobinD » Wed Nov 22, 2017 9:53 pm

Thanks for all your thoughtful replies. I saw my surgeon again yesterday and she is going to do a colonoscopy to remove all the smaller polyps and then take out the large tumor the next day. I am far more comfortable with this scenario. While I may still seek a second opinion, I trust her and she is at a hospital associated with MD Anderson.


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