Hello, and welcome to the Colon Club. I can't believe you're going through this. FOLFOX is composed of very tough drugs (as you've found out) and to put you on that without absolute evidence you have colon cancer seems extreme to me. I have stage IV colon cancer and my husband had stage III lymphoma (which has been cured through a stem cell transplant. Lymphoma can be very tricky to diagnosis. His biopsies had to go to three different hospitals to get the diagnosis down. Given your negative colonoscopy I think it would be far better for you to get to a comprehensive cancer center before continuing with the FOLFOX, and let them go through all the data and figure out what's up.Have you had a CEA done? Have you been having GI symptoms?
We''ll stand by you while they're getting this figured out.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now