I totally understand how your feel. I was diagnosed around the same time as you. I see my oncologist next Tuesday and will have bloodwork. So always a little nervous, even though my CEA has never been higher than 1. My next scan will be in January to check a tiny 4mm lung nodule that has been stable and oncologist believes is just scar tissue. I've always said, most people think when you finish treatment and are NED everything goes back to normal. Not only do they not realize the side effects you deal with from surgery, chemo, and radiation, they don't understand the anxiety of being tested every 3-6 months brings until it is determined you're NED again.
All you can do is go by how you feel, and knowing that all follow up scans and tests have been negative for recurrence, try not to worry. I know it is so easy to say. Hopefully, the further out we get from treatment and continue to have negative scans we will rest a little easier.
Last edited by susie0915
on Sun Nov 19, 2017 12:17 pm, edited 1 time in total.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev, c-diff inf
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT