Congratulations on making it through the year with the pump and your new normal. I look forward to your posts, since you and my wife's disease is similar in nature. You do have 10 years of youth on her though, and for what I have heard from many, that is good for you! We were at your same crossroads not very long ago. I remember discussing the decision making process with you here, that we had made after reviewing two separate oncologist's recommendations.
MA General Doctor said it was ok to stop and to monitor. She did a PET scan after a short break and she was still NED.
The Dana Farber Doctor said, why let it get back going when treatments have worked so well and NED is the new normal when being treated.
My wife went wit the three week plan of two weeks on a reduced Zeloda and the cycle beginning with an infusion of Avastin. The third week is an off week where your blood counts can recover.
So far this new plan is working great! Still NED after a recent CT scan, and the only visible difficulty is a good nap every afternoon for a couple of hours before dinner. Hand and Foot syndrome is very controllable with a lower dose of Zeloda. In fact, I do not see it anymore on her.
She'll be NED in a few months for about 3 years now. Life has been very good for us considering the circumstances. She is still working PT and has enough energy to be a Mom, wife, daughter, aunt, and sister. Currently I see no downfall to the maintenance therapy. I know Avastin has its risks, but we both are ok with it until our kids get older and further on in College. We have a HS Senior graduating in May. That will be a good benchmark for another review again.
Wishing you and your family all the best in the coming holiday season.
My thoughts are with you during this journey... Keep up the great work!
Spouse of wife 47 years old
10/2014, Stage IV Metastatic CC
Lymph node involvement 12/15, w/ positive PET on para-aortic lymph nodes.
5 cm sigmoid tumor resection as well as positive Virchow lymph node.
KRAS mut, Highly Differentiated, Lynch Negative
Folfox and Avastin 1 YR (Oxi for 5 months) NED 05/2015
Zeloda and Avastin since 01/2016
Chemo break 03/2017, back on Zeloda and Avastin 04/2017.
"...Perseverance is not a long race; it is many short races one after the other."