I'm honored to be here with you

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CaliforniaBagMan
Posts: 328
Joined: Wed Oct 14, 2009 6:05 pm
Location: California

I'm honored to be here with you

Postby CaliforniaBagMan » Thu Nov 16, 2017 10:13 am

I read the threads here, and admire so much about the people who participate in this forum.

The courage of people. The courage of families of people. And the untiring willingness to share information, exchange stories, and sometimes just give a hug when it's time to do that. I admire those putting up a courageous battle and fight-- with uncertainty of outcome.

I have been lucky. It was ten years ago that my surgery changed me from someone afflicted with cancer to someone who was not. And I have been lucky along the entire journey to receive the wise and sometimes irreverent counsel of those who participate here. Which helped. Thank you all.
CT guided biopsy on mass - still NED !!!
CT scan finds new 2x3cm mass on 10/09
APR surgery 11/07; NED thereafter
Folfox/radiation 9/07-10/07
DX Stage III rectal cancer 7/07

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: I'm honored to be here with you

Postby Robino1 » Thu Nov 16, 2017 11:29 am

Hi! Nice to meet you, I'm Robin :)

I'm in the trenches right now fighting. I hope to be able to say that I am in NEDville someday. Congratulations on your continued success. All of us still fighting really need to hear of success after getting the dreaded news.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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bitchslapped
Posts: 1483
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: I'm honored to be here with you

Postby bitchslapped » Thu Nov 16, 2017 11:55 am

Very nice post. Agree on all counts. Congratulations on 10 years NED!

Best Wishes
BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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susie0915
Posts: 847
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: I'm honored to be here with you

Postby susie0915 » Thu Nov 16, 2017 4:09 pm

Thank you for posting such a nice thought. I agree with everything you have said. It has helped me immensely to have a place to go and express my feelings, tell my story, and ask questions from those who have been through the same experience. I wish I would have found this forum when I was going through treatment, but it's okay I'm here now. Congratulations on 10 years. I love to hear these stories. So inspiring.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Ron50
Posts: 665
Joined: Fri Feb 10, 2006 7:04 pm

Re: I'm honored to be here with you

Postby Ron50 » Thu Nov 16, 2017 5:27 pm

Hi Bag man,
Congratulations on the ten years and I agree totally with your sentiments. I am also a stage 3c survivor. I have always felt that these boards are better for having a mix of the new and the old. The former for getting information and answers and the latter for experience and hope. This coming Jan 11th will be my 20 th year still cancer free. Best wishes Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Zig2017
Posts: 139
Joined: Tue Sep 26, 2017 12:26 pm

Re: I'm honored to be here with you

Postby Zig2017 » Thu Nov 16, 2017 9:02 pm

Hi California Bag Man, i agree - the people here are so knowledgeable and encouraging. I’m new here and they have helped me tremendously. Everyone here speaks from experience and they get what it’s like to not only be a patient, but in other instances be a caregiver to someone with colon cancer. Love that you’re ten years NED! Many more years of happiness and health to you!
Hubby stage 3C June 2017
MSS BRAF Mutation
18 LN positive
Adenosquamous CC
12 FOLFOX
Right Hemicolectomy
11/08/17 numerous nodules and lymph nodes throughout chest and abdomen. Stage IV.
11/2017 moved care to Sloan clinical trial for BRAF mutation
1/30/18 off clinical trial
2/2/18 one dose of Irinotecan
2/5/18 Hospitalization and hospice
2/16/18 came home from hospital and went home to his Lord at 1:10 pm

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juliej
Posts: 2859
Joined: Thu Aug 05, 2010 12:59 pm

Re: I'm honored to be here with you

Postby juliej » Fri Nov 17, 2017 8:20 pm

And we're honored to have you with us, CaliforniaBagMan! Ten years is awesome. Wishing you a long and healthy life, and thanks for sharing!

Juliej
Stage IV, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/11
LAR, liver resec, HAI pump 11/11
Double lung surgery + ileo reversal 2/12
Adjuvant Xeloda 3-9/12
VATS rt. lung 12/21/12 - benign granuloma!
NED 3/17/12 to 7/13/2018, CEA<1

Dori W
Posts: 29
Joined: Mon Aug 25, 2014 2:30 pm
Facebook Username: Dori Woodhouse

Re: I'm honored to be here with you

Postby Dori W » Mon Nov 20, 2017 7:39 pm

Congratulations on ten years! I am at 9.5 years myself. I was just remembering today how I felt at Thanksgiving dinner nine years ago, right after my twelfth round of chemo. Ugh.

I think it's great for those with lots of NED time to come in and offer wisdom and support. I haven't been around at all lately, but I see others doing a good job of this.

Dori
Diagnosed stage 3C signet ring colon cancer in May, 2008
14 out of 18 positive lymph nodes
Final treatment in November, 2008
NED ever since
I used to have an account under "Dori," but I've lost access to it.
You can view my old posts here: search.php?author_id=1446&sr=posts

DarknessEmbraced
Posts: 3128
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm honored to be here with you

Postby DarknessEmbraced » Tue Nov 21, 2017 12:19 pm

Congratulations on 10 years NED, that's wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

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CaliforniaBagMan
Posts: 328
Joined: Wed Oct 14, 2009 6:05 pm
Location: California

Re: I'm honored to be here with you

Postby CaliforniaBagMan » Sat Nov 25, 2017 8:24 pm

Darkness,

I was surprised to read you had no chemo and no radiation. Lucky you!

If that typical protocol now for your staging? Or did you decide or decline either of them?
CT guided biopsy on mass - still NED !!!
CT scan finds new 2x3cm mass on 10/09
APR surgery 11/07; NED thereafter
Folfox/radiation 9/07-10/07
DX Stage III rectal cancer 7/07

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CRguy
Posts: 9616
Joined: Sun Feb 10, 2008 6:00 pm

Re: I'm honored to be here with you

Postby CRguy » Sat Nov 25, 2017 9:47 pm

CaliforniaBagMan wrote: And I have been lucky along the entire journey to receive the wise and sometimes irreverent counsel of those who participate here. Which helped. Thank you all.
Backatcha' CBM !!

juliej wrote:And we're honored to have you with us, CaliforniaBagMan!
I am with JJ on this one too

Cheers, Harmony and MANY more years of NED
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 5680
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm honored to be here with you

Postby Lee » Sun Nov 26, 2017 5:16 pm

Congratulations on 10 years NED.

Enjoy the coming holidays,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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