Inconclusive Biopsy

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Beccaschocked
Posts: 40
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Inconclusive Biopsy

Postby Beccaschocked » Wed Nov 22, 2017 10:50 pm

Glad they took it out, it was a false negative and is in fact a crc met to lung.

Back in the fight!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection; 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1; 0.9......
7/18-2023 - Clean Scans

DarknessEmbraced
Posts: 3815
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Inconclusive Biopsy

Postby DarknessEmbraced » Wed Nov 29, 2017 5:33 pm

I'm sorry to hear it was a met.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Inconclusive Biopsy

Postby juliej » Wed Nov 29, 2017 6:11 pm

Beccaschocked wrote:Glad they took it out, it was a false negative and is in fact a crc met to lung.

Back in the fight!

The good news is the bastard is out of you!!! You made the right decision going for the surgery. Use your incentive spirometer to strengthen your lungs while you're recovering. Then you'll probably have a few months of adjuvant chemo to make sure no stray cancer cells are hanging around. And then you're back to NEDsville!

Stay strong! You got this!

Hugs to you!
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

Beccaschocked
Posts: 40
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: Inconclusive Biopsy

Postby Beccaschocked » Tue Jan 02, 2018 3:53 pm

I wanted to give a quick update on my situation.

On 11/20 I had a lower left lobectomy. The pathology report showed clear margins with 0/17 lymph node involvement.

12/26 follow up PET was clear, indicating a sucessful surgery. NED again just in time for the new year!

I have consulted with two oncologist (Virginia P. Piper & MD Anderson) and my integrative oncologist about what to do going forward. They’re in agreement that due to my negative PET and low CEA they are all recommending we skip chemo and monitor closely. I’ll get month CEA draw and scans every 3 months. We are also considering starting mistletoe injections as an adjunct therapy.

Physically recovering from the lobectomy was a piece of cake, but emotionally I’m struggling. I’m terrified that we’re making the wrong decision skipping chemo... I’d love to hear from anyone who had a lung resection without follow up chemo.

Thanks and Happy New Year!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection; 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.; 1.0; 1.1; 1.1; 0.9......
7/18-2023 - Clean Scans


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