Long Time Survivor--First visit to this forum

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idaho-luke
Posts: 2
Joined: Sun Nov 12, 2017 3:49 am
Facebook Username: David Reed

Long Time Survivor--First visit to this forum

Postby idaho-luke » Sun Nov 12, 2017 4:29 am

I am in my 14th year of survival following surgery for stage 3 rectal cancer. The surgery removed 12 inches of my colon including half my rectum. Surgery was followed by seven weeks of radiation treatments five days per week, accompanied by continuous infusion chemotherapy also five days per week, 24 hours a day. I had two follow-up 14 day continuous chemo treatments a few months later with a higher dosage of fluorouracil than the earlier chemo. My strength was minimally affected by all of this, and I was able to go to work every day during my treatments. Five years, three colonoscopies, and 11 CT scans after my last chemo treatment I was pronounced cancer free. That was seven years ago. I have been able to lead a normal life with the exception of the problem of frequent bowel movements (6-8 per day, sometimes more) and some diarrhea. I have managed my situation with dietary restrictions and over-the-counter supplements (metamucil capsules, activated charcoal capsules for gas, and dietary enzymes) that I take with every meal. The most comprehensive advice I have found came from an Australian government publication that I found here: https://www.continence.org.au/download. ... urgery.pdf. I have tailored my diet based on information I found in this document, and that has helped me a good deal. I am now 73 years old, but I feel quite strong and lead a very active life. I have played 152 rounds of golf this year and have gone downhill skiing 41 times--but still I have to manage all of my activities around my bowel habits.

Robino1
Posts: 172
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: Long Time Survivor--First visit to this forum

Postby Robino1 » Sun Nov 12, 2017 12:45 pm

Welcome to the forum and thank you for showing many that colon cancer is survivable! :)
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

mozart13
Posts: 96
Joined: Fri Dec 09, 2016 7:38 pm
Location: Toronto

Re: Long Time Survivor--First visit to this forum

Postby mozart13 » Sun Nov 12, 2017 12:50 pm

Thats great Luke, to see that rectal cancer is curable!
55 year, male, never been seek in my life.
Diagnosed with T1,T2 N0 M0 rectal cancer, tumor 4.5cm,
Stage 1
CEA 2.0
Discovered by pure lack, after taking baby ASA, had blood in stool.
25 sessions of Chemo/rad finished end of January 2017, focus was on lymph nodes
Tumor erased, CCR, negative mri, ct, scope, no evidence of cancer
W&W approach 8)
April 2017, folfox 8 rounds plus 2 rounds of xeloda
Sept.2017 CT , MRI negative

User avatar
CRguy
Posts: 9283
Joined: Sun Feb 10, 2008 6:00 pm

Re: Long Time Survivor--First visit to this forum

Postby CRguy » Sun Nov 12, 2017 1:23 pm

Welcome to the forum and congrats for your good success !

I could not get your link to work but was wondering if either of these links would have the same info you described ?

http://www.bladderbowel.gov.au/assets/d ... rgery.html

https://www.continence.org.au/pages/man ... blems.html

This google search also brings up a lot of info https://encrypted.google.com/search?sou ... -Rj3lbdZ5o

Cheers and best wishes
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

idaho-luke
Posts: 2
Joined: Sun Nov 12, 2017 3:49 am
Facebook Username: David Reed

Re: Long Time Survivor--First visit to this forum

Postby idaho-luke » Sun Nov 12, 2017 3:23 pm

Yes, your first link brings up the exact pdf document I was referring to. I found it through google search of the following "australian government practical advice after bowel surgery". The first site that pops up with the google search will download the document.

tater
Posts: 28
Joined: Wed Jul 19, 2017 5:53 pm

Re: Long Time Survivor--First visit to this forum

Postby tater » Sun Nov 12, 2017 11:18 pm

What a great story for me to read today as I sit next to my wife int he hospital as she is recovering from having her rectum removed, iliac nodes on right side removed and hysterectomy. She is a stage four with five tiny stupid liver mets unless pathology tells us different in two days. Fingers crossed.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 17
Stage 4 Liver mets 3(5mm-6mm) and iliac node July 17, 17
FOLFOX + Avistan July 18 CEA 2.3

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susie0915
Posts: 425
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Long Time Survivor--First visit to this forum

Postby susie0915 » Mon Nov 13, 2017 9:11 am

tater wrote:What a great story for me to read today as I sit next to my wife int he hospital as she is recovering from having her rectum removed, iliac nodes on right side removed and hysterectomy. She is a stage four with five tiny stupid liver mets unless pathology tells us different in two days. Fingers crossed.

Good thoughts coming your way for your wife. Hope there is some positive news.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT


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