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Long Time Survivor--First visit to this forum

Posted: Sun Nov 12, 2017 4:29 am
by idaho-luke
I am in my 14th year of survival following surgery for stage 3 rectal cancer. The surgery removed 12 inches of my colon including half my rectum. Surgery was followed by seven weeks of radiation treatments five days per week, accompanied by continuous infusion chemotherapy also five days per week, 24 hours a day. I had two follow-up 14 day continuous chemo treatments a few months later with a higher dosage of fluorouracil than the earlier chemo. My strength was minimally affected by all of this, and I was able to go to work every day during my treatments. Five years, three colonoscopies, and 11 CT scans after my last chemo treatment I was pronounced cancer free. That was seven years ago. I have been able to lead a normal life with the exception of the problem of frequent bowel movements (6-8 per day, sometimes more) and some diarrhea. I have managed my situation with dietary restrictions and over-the-counter supplements (metamucil capsules, activated charcoal capsules for gas, and dietary enzymes) that I take with every meal. The most comprehensive advice I have found came from an Australian government publication that I found here: https://www.continence.org.au/download. ... urgery.pdf. I have tailored my diet based on information I found in this document, and that has helped me a good deal. I am now 73 years old, but I feel quite strong and lead a very active life. I have played 152 rounds of golf this year and have gone downhill skiing 41 times--but still I have to manage all of my activities around my bowel habits.

Re: Long Time Survivor--First visit to this forum

Posted: Sun Nov 12, 2017 12:45 pm
by Robino1
Welcome to the forum and thank you for showing many that colon cancer is survivable! :)

Re: Long Time Survivor--First visit to this forum

Posted: Sun Nov 12, 2017 12:50 pm
by mozart13
Thats great Luke, to see that rectal cancer is curable!

Re: Long Time Survivor--First visit to this forum

Posted: Sun Nov 12, 2017 1:23 pm
by CRguy
Welcome to the forum and congrats for your good success !

I could not get your link to work but was wondering if either of these links would have the same info you described ?

http://www.bladderbowel.gov.au/assets/d ... rgery.html

https://www.continence.org.au/pages/man ... blems.html

This google search also brings up a lot of info https://encrypted.google.com/search?sou ... -Rj3lbdZ5o

Cheers and best wishes
CRguy

Re: Long Time Survivor--First visit to this forum

Posted: Sun Nov 12, 2017 3:23 pm
by idaho-luke
Yes, your first link brings up the exact pdf document I was referring to. I found it through google search of the following "australian government practical advice after bowel surgery". The first site that pops up with the google search will download the document.

Re: Long Time Survivor--First visit to this forum

Posted: Sun Nov 12, 2017 11:18 pm
by tater
What a great story for me to read today as I sit next to my wife int he hospital as she is recovering from having her rectum removed, iliac nodes on right side removed and hysterectomy. She is a stage four with five tiny stupid liver mets unless pathology tells us different in two days. Fingers crossed.

Re: Long Time Survivor--First visit to this forum

Posted: Mon Nov 13, 2017 9:11 am
by susie0915
tater wrote:What a great story for me to read today as I sit next to my wife int he hospital as she is recovering from having her rectum removed, iliac nodes on right side removed and hysterectomy. She is a stage four with five tiny stupid liver mets unless pathology tells us different in two days. Fingers crossed.

Good thoughts coming your way for your wife. Hope there is some positive news.