We flew to FL in October (it's a 2.5 hour flight) for a week. Best week in a long time! We left the Saturday after Tuesday chemo (so 5FU bag was off on Thursday) and came back the following Saturday. Did some shopping at Disney and Universal and toured Kennedy Space Center. Took a bottle of Kaopectate which was needed; took a nap every afternoon; took a bagful of ostomy supplies and all phone numbers. Nurse gave us special masks for the plane.
We've done two train trips to NYC; another planned for mid-December which will be the first one that DH is on Xeloda for.
We have a down payment on a small ship cruise (750 passengers) from Barcelona to Rome that leaves in late April. Travel agent found us fabulous insurance through TravelEx that covers pre-existing conditions. When we told the oncologist 2 weeks ago, he said he'd work around it and that he'd love to go on something like that! Full payment is due in January so we could back out until then for free. It is a very long flight so we are grateful for business class air included.
Given that DH is a "chemo for life" guy, and travel has always been our thing, we're figuring it out. Some people figure out how to spend time with kids or grandkids or work or retire or something else.
So maybe start small with a short jaunt and see how it goes? Prepare NOT to go full touring speed (big adjustment for us). But prepare and research for contengencies.
Caregiver to DH, dx age 50, mets to liver/lungs, MSS, quad wild
10/16: left hemicolectomy w/perm. colostomy, CEA 114
11/16: port in, FOLFOX + Avastin; CEA down to 11 by 4/17
6/17: CEA 15, OX discontinued for now due to neuropathy
11/17: CEA 38, changed to CAPOX+A; CEA down to 29 in 12/17
1/18: CAPOX caused bilirubin of 4.5/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin too high for irinitican, start Vectibex
6/18: biliubin down to 2, ascites mostly gone .