Postby Joecool1983 » Fri Dec 22, 2017 12:36 pm
So, update. I have a new Surgeon. I had been having severe pain in my right leg, from my right butt down to my ankle that was getting progressively worse. I could not put any weight on my right leg at all. I was stuck in bed. Unable to move. I was taking 15mg Oxycodone every 6 hours. I went to a pain management clinic and even got a nerve block injection in my spine. Nothing was really helping. I was also having severe frequent diarrheal movements. It all came to a head on Sunday November 26. About 11:30 at night I had uncontrolable Diarrhea all over the floor and it got all over my body. I got in the shower to Clean up. Luckily my nurse/caretaker Diane was there with me. I was starting to feel dizzy and lightheaded and called Diane's name. I turned off the water. Then, I passed out in the shower. I lost complete consciousness. Diane was able to grab me and hold me upright so I didn't fall. When I regained consciousness, everything was pitch black. I had temporarily lost my vision, my legs were all wobbly. Diane was sort of dragging me out of the bathroom towards the hallway. She said my eyes had rolled into the back of my head. I was totally spaced out. I could hear hear crying and screaming at me to stay with her. She got me into the hallway where I collapsed on a quilt and I regained my vision. Paramedics were were called. They transported me to BWMC(Baltimore Washington Medical Center) where I had been getting all of my Cancer treatment. I was in so much pain that night. The nurses were so sweet. The initial nurse was quick to order meds. Combo of Dilaudid and Ativan which took all the pain away. The Emergency Room Dr. Thomas was a jerk. He ordered a CT scan which was promptly performed. But, I guess he knows my Surgeon at BWMC, Dr. Boutros and had talked to him. He said if I was refusing Dr. Boutros' treatment plan he was cutting me loose. Discharge nurse was sweet. We talked about Piriformis Syndrome which I thought I had at the time. She said she had it and gave me recommendations. Fast forward to Friday December 1st. I met with my new Surgeon at Mercy Medical Center, Dr. Campell. We gave him all my records, CT scan reports, DVDs, and whatnot. It took him no time to figure out what had been causing all this severe pain. All my scans from BWMC have been detecting a thickening of the presacral tissue. It's been getting worse over time. The CT scan from the day I fell in the shower was it's peak. He correctly diagnosed it as a presacral abscess/infection. He thought it might be new cancer growth. He got me into the Interventional Radiologist, on December 11th, for a biopsy of the area(came back negative) and they drained 80ccs of bloody/pussy fluid from the area. He installed a JP drain in me which I have been wearing since. I am also on antibiotics. Right now the plan is to treat the abscess/infection and get it cleared up as soon as possible so he can eventually get into my Liver to remove the Tumors. This abscess/infection is something that has been going on for a year and half since June 2016. My Medical team at BWMC failed to identify this for so long. This is something that could have killed me. I feel like Dr. Campell saved my life.
Diagnosed 12/17/15- 32 years old- Tumor 3"x1.5" at the Rectosigmoid Colon
Stage IIIA T3N1M0
Radiation and chemotherapy(Xeloda pill form) January 2016- February 2016
4/11/16- Surgery to remove the tumor/colon resection. Robotic LAR/Dissection of Lymph Node. 1/19 showed any involvement
5/16-10/16- Follow up chemotherapy- FOLFOX, 8 Treatments
1/17- Routine CT scan found 3 Metastases on my Liver
4/17-8/17- 5 Treatments Avastin/Irinotecan