New CEA jumped another 1.4 in 3 weeks.

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dianetavegia
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New CEA jumped another 1.4 in 3 weeks.

Postby dianetavegia » Mon Nov 06, 2017 7:52 am

I've put in a message to ask to have scans. It's now 5.8 and has never been that high when I didn't have a met.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

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susie0915
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Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: New CEA jumped another 1.4 in 3 weeks.

Postby susie0915 » Mon Nov 06, 2017 9:06 am

I think that is a good idea. If nothing else peace of mind.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

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Robino1
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Re: New CEA jumped another 1.4 in 3 weeks.

Postby Robino1 » Mon Nov 06, 2017 9:14 am

Praying everything turns out ok.

Definitely push for a scan.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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dianetavegia
Posts: 2700
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: New CEA jumped another 1.4 in 3 weeks.

Postby dianetavegia » Mon Nov 06, 2017 9:19 am

My scans six months ago had a cluster of tiny lung nodules indicative of infection.

Our 23 year old son 'vapes' in his bedroom with the door closed. Many times I knock on his door and it's foggy when he opens it. He has an air cleaner that helps. It used to be so thick you could hardly see! I know I have to inhale some of that. I can't find anything about that online and did find an old post here where people were vaping MJ, not nicotine/ juices.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: New CEA jumped another 1.4 in 3 weeks.

Postby SweetC80 » Mon Nov 06, 2017 10:10 am

Hope you can get a scan soon and everything is ok. Better to be safe and just to take a peek at what, if anything, is going on. FX all is well.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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Robino1
Posts: 463
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Facebook Username: Robin.lawthers
Location: Florida

Re: New CEA jumped another 1.4 in 3 weeks.

Postby Robino1 » Mon Nov 06, 2017 11:08 am

dianetavegia wrote:My scans six months ago had a cluster of tiny lung nodules indicative of infection.

Our 23 year old son 'vapes' in his bedroom with the door closed. Many times I knock on his door and it's foggy when he opens it. He has an air cleaner that helps. It used to be so thick you could hardly see! I know I have to inhale some of that. I can't find anything about that online and did find an old post here where people were vaping MJ, not nicotine/ juices.


I am a vaper. Sounds like he likes to cloud the room. I vape to not smoke, not for the clouds I 'could' produce. My lungs have never been healthier. I've been vaping for over 5 years.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Detox
Posts: 29
Joined: Fri Apr 28, 2017 5:27 pm

Re: New CEA jumped another 1.4 in 3 weeks.

Postby Detox » Mon Nov 06, 2017 11:10 am

Sorry to hear that your CEA went up again.

I'm still optimistic you'll be fine and hoping the scans come back clear.

stu
Posts: 849
Joined: Sat Aug 17, 2013 5:46 pm

Re: New CEA jumped another 1.4 in 3 weeks.

Postby stu » Mon Nov 06, 2017 11:55 am

Hope it turns out to be ok for you . Those lung nodules cause so much anxiety . My mum had a few show up for a couple of scans but have disappeared now .
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

radnyc
Posts: 299
Joined: Tue Apr 06, 2010 6:32 pm

Re: New CEA jumped another 1.4 in 3 weeks.

Postby radnyc » Mon Nov 06, 2017 1:52 pm

Hey Diane, sorry you're going through all this stress about your CEA. I'm also one whose CEA runs on the high side, mostly above the 5 reading. My oncologist says that that's just my body, some people, will always have a higher CEA with no sign of cancer. He will only be concerned if it would go above 10 for my case. One thing that I'm going to look into is Hypothyroidism, it's a cause of elevated CEA, I've never had a test for it, but my Mom's had a hyper active thyroid for a while, could be a genetic thing. I will have my GP test for it soon. Good thing is that with treatment it can be kept in check and causes no issues, people who are treated see their CEA levels drop to normal after treatment. Check this link:

https://www.ncbi.nlm.nih.gov/pubmed/11414169

Hopefully everything is fine, and having scans makes sense.

Al
DX Jan '10, at 47
Feb - colon resection - 2/17 nodes
April - liver mets - Stage 4
3 months Folfox chemotherapy
August '10 liver resection and HAI pump
7 months chemo FUDR HAI and Folfiri systemic
NED since August 2010
Last treatment April '11
HAI Pump removed Dec '15

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dianetavegia
Posts: 2700
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: New CEA jumped another 1.4 in 3 weeks.

Postby dianetavegia » Mon Nov 06, 2017 4:13 pm

radnyc wrote:Hey Diane, sorry you're going through all this stress about your CEA. I'm also one whose CEA runs on the high side, mostly above the 5 reading. My oncologist says that that's just my body, some people, will always have a higher CEA with no sign of cancer. He will only be concerned if it would go above 10 for my case. One thing that I'm going to look into is Hypothyroidism, it's a cause of elevated CEA, I've never had a test for it, but my Mom's had a hyper active thyroid for a while, could be a genetic thing. I will have my GP test for it soon. Good thing is that with treatment it can be kept in check and causes no issues, people who are treated see their CEA levels drop to normal after treatment. Check this link:

https://www.ncbi.nlm.nih.gov/pubmed/11414169

Hopefully everything is fine, and having scans makes sense.

Al


I happened to find that info earlier today, too! I have all the signs of hypothyroid! Weight gain (11 lbs in 9 years and eating less). Constipation. Dry skin (arms and legs). Joints ache (mostly my knees). High cholesterol. I'm turning 67 and it's very common in women my age. ETC.............. Thanks for that link!
Last edited by dianetavegia on Mon Nov 06, 2017 4:44 pm, edited 1 time in total.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

User avatar
dianetavegia
Posts: 2700
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: New CEA jumped another 1.4 in 3 weeks.

Postby dianetavegia » Mon Nov 06, 2017 4:20 pm

Robino1 wrote:
dianetavegia wrote:My scans six months ago had a cluster of tiny lung nodules indicative of infection.

Our 23 year old son 'vapes' in his bedroom with the door closed. Many times I knock on his door and it's foggy when he opens it. He has an air cleaner that helps. It used to be so thick you could hardly see! I know I have to inhale some of that. I can't find anything about that online and did find an old post here where people were vaping MJ, not nicotine/ juices.


I am a vaper. Sounds like he likes to cloud the room. I vape to not smoke, not for the clouds I 'could' produce. My lungs have never been healthier. I've been vaping for over 5 years.


Nick vapes to prevent smoking, too. He has a humidifier and a room purifier but I wondered if my inhaling the fog might cause an elevated CEA reading. His room is probably 10 X 11. Our house is not large. Anyhow, he and I are good friends and he works rotating shifts so when he's off or just want to chat, his door is open but if he's vaping, he closes it. He leaves it open while at work. I can't find anything that says vaping is a problem for someone who happens to just be in the room or near the fog.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: New CEA jumped another 1.4 in 3 weeks.

Postby Robino1 » Mon Nov 06, 2017 5:22 pm

dianetavegia wrote:
Robino1 wrote:
dianetavegia wrote:My scans six months ago had a cluster of tiny lung nodules indicative of infection.

Our 23 year old son 'vapes' in his bedroom with the door closed. Many times I knock on his door and it's foggy when he opens it. He has an air cleaner that helps. It used to be so thick you could hardly see! I know I have to inhale some of that. I can't find anything about that online and did find an old post here where people were vaping MJ, not nicotine/ juices.


I am a vaper. Sounds like he likes to cloud the room. I vape to not smoke, not for the clouds I 'could' produce. My lungs have never been healthier. I've been vaping for over 5 years.


Nick vapes to prevent smoking, too. He has a humidifier and a room purifier but I wondered if my inhaling the fog might cause an elevated CEA reading. His room is probably 10 X 11. Our house is not large. Anyhow, he and I are good friends and he works rotating shifts so when he's off or just want to chat, his door is open but if he's vaping, he closes it. He leaves it open while at work. I can't find anything that says vaping is a problem for someone who happens to just be in the room or near the fog.


I vaped for at least two years before this latest cancer. It did nothing to my CEA numbers. Nicotine use 'may' make it rise. You shouldn't worry about any nicotine coming from the ecig vapor. The nic particles are large and will drop out into the user before ever being released into the air. Studies have been done and there is no detriment to any bystanders. My hubby is a non smoker, non vaper. He does not have any issues with me vaping around him. I vape in the house without anything extra to take the vapor out. I don't fog a room up though LOL!

I'm a huge advocate for ecigs. I'm actually a moderator for an ecig forum and have spent years researching this stuff.
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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dianetavegia
Posts: 2700
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: New CEA jumped another 1.4 in 3 weeks.

Postby dianetavegia » Mon Nov 06, 2017 7:18 pm

Thanks Robin, I was just trying to find any excuse for my rise in CEA. Nine years of this.... and now I'm almost 67. I've been healthy for most of the 9 years but mentally it's completely changed me and stolen my joy. My husband has been deathly ill twice this summer and has a large aneurysm on top of his heart. He works full time teaching and has done that to keep ME insured. I want to be here to care for him and would love to see my 23 year old find a good girl from a loving, large, church going family. He's always had just the 2 of us since he's so much younger than the rest.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Nine years 10 months since my original dx and 6 1/2 years post liver resection.
NED April 2018!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

User avatar
Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: New CEA jumped another 1.4 in 3 weeks.

Postby Robino1 » Mon Nov 06, 2017 7:56 pm

{{{{{{{{ Huge Hugs }}}}}}}}}} I know this all just sucks. Try not to worry before you know if you have to worry!
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e


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