betsydoglover wrote:Any thoughts would be appreciated. My oncologist will never use the "cured" word - neither will I - just how we are, but at the same time I'm not sure I should keep on scanning for the rest of my life,
CRguy wrote:I am currently doing ( tomorrow actually !!!! ) ultrasound and xrays in my self directed "follow up" with my GP.
I can get back to CT / PET / MRI as needed if anything of concern shows up and am doing every 3 years colonoscopies.
CRguy wrote: In the CRC setting, Usounds would be ok for abdominal effusions, cystic structures, surfaces of organs and needle guided biopsies ... BUTT not a primary go to for CRC diagnosis.
I am getting them done to follow up of fatty liver changes and a fat mass in one lobe area. I don't have any cystic or solid masses involved or known mets.
Multi view survey xrays of chest / abdomen down to pelvic floor are an alternate screening and surveillance method for primary diagnosis or follow up.
juliej wrote:Betsy, my oncologist basically said "we are in new territory here." There just isn't an official protocol on how to monitor Stage 4 survivors.betsydoglover wrote:Any thoughts would be appreciated. My oncologist will never use the "cured" word - neither will I - just how we are, but at the same time I'm not sure I should keep on scanning for the rest of my life,
juliej wrote:I just "graduated" to 6 month scans on my last visit. BUT she wants to keep all the labs (CEA, LDH, CMP, CBC) every 2 months for now. However, I was a pretty "hard-core" Stage 4. At diagnosis, I had several mets to my liver and one in each lung. I've had clear scans for quite awhile now so things are looking good. I suspect she'll go to yearly scans at some point, but for sure not until my HAI pump has been removed.
juliej wrote:CRguy, how were your ultrasound and xrays? Everything still good? I'm due for my 3 year colonoscopy next month. Oh joy.
juliej wrote:Thanks, CRguy! Great info on using alternative diagnostic imaging! I will talk to my docs about this in the future (assuming everything keeps going well for me!).
Question: what are the limits of xrays? Do they show the difference between scarring and something else? Would they show something more complex, like for example, interstitial lung disease? Since xrays show radiodense tissues, I thought they showed mostly bone and some minor lung detail??? Gland and scar tissue show up but tend to get lost in the clutter, I thought. Just curious... and I know you know a lot more than me (and most folks)!
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