My husband has been stalking these boards on my behalf of my for the past two and a half year and reporting stories back to me. We’ve been celebrating and mourning along side you from the shadows.
After this last scan, not a good one, I decided I needed in on some of the wisdom and love!
I’m a 34 year old mother of two. I was diagnosed with stage 4 CRC with Mets to the liver in March of 2015, weeks after giving birth to my daughter.
I underwent 3 infusions of folfoxiri + avastin and 3 folfiri + avastin to prepare for liver resection. In July of 2015 I had a successful, albeit complicated, liver and colon resection. I followed up with 6 infusions of folfox.
I had two years living the good life NED.
In my most recent scan a nodule that had been stable at 5mm for 2 year grew to 12mm. Obviously we’re devestated, but still feel positive knowing that it can *hopefully* be removed and we can get back on the NED track.
A question- to anyone with recurrent lung Mets, what was your post surgical protocol? There doesn’t seem to be a standard protocol that I can find, and my oncologist is adamant that we need to get pathology reports back prior to deciding on treatment, perhaps more thoughtful than my rash planning!
I’m also 100% open to suggestions or advice on lifestyle changes you’ve found to help. (Already plant based and sugar avoider, but I fell of the wagon the last few months).
Thank you all! I already have found comfort in sifting through your stories.
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED