The Colon Club

Hello,

My husband has been stalking these boards on my behalf of my for the past two and a half year and reporting stories back to me. We’ve been celebrating and mourning along side you from the shadows.

After this last scan, not a good one, I decided I needed in on some of the wisdom and love!

My story...
I’m a 34 year old mother of two. I was diagnosed with stage 4 CRC with Mets to the liver in March of 2015, weeks after giving birth to my daughter.

I underwent 3 infusions of folfoxiri + avastin and 3 folfiri + avastin to prepare for liver resection. In July of 2015 I had a successful, albeit complicated, liver and colon resection. I followed up with 6 infusions of folfox.

I had two years living the good life NED.

In my most recent scan a nodule that had been stable at 5mm for 2 year grew to 12mm. Obviously we’re devestated, but still feel positive knowing that it can *hopefully* be removed and we can get back on the NED track.

A question- to anyone with recurrent lung Mets, what was your post surgical protocol? There doesn’t seem to be a standard protocol that I can find, and my oncologist is adamant that we need to get pathology reports back prior to deciding on treatment, perhaps more thoughtful than my rash planning!

I’m also 100% open to suggestions or advice on lifestyle changes you’ve found to help. (Already plant based and sugar avoider, but I fell of the wagon the last few months).

Thank you all! I already have found comfort in sifting through your stories.

Hi and welcome,

So sorry no one has responded sooner. Sometimes this board gets busy and some post get bumped down pretty fast.

Since you are dealing with one spot, I believe your chances of becoming NED again are very good. Hopefully by bumping this back up to the top, others who have walked in your shoes with have some good advice. I know there are some procedures out there that can deal with this.

My advice, get opinions from major cancer treatment centers. See what options you have.

Good luck,

Lee

First, I'm impressed and happy that you were NED from Stage 4. Second, if you did it before ...

I can't offer any advice to your post except for these four recommendations:

Exercise
Two servings of tree nuts per week
Daily regimen aspirin
Vitamin D3 supplements

There are many treatments for lung mets: VATS, ablation, SBRT and proton radiation. And, of course, chemo. Your nodule is big enough for a biopsy - is that the pathology your doctor is waiting for?

Good luck in getting NED again!

Thank you so much for the responses. It’s always good to connect with people battling the same beast!

We are going to biopsy it, but my lobectomy is already scheduled as they are very confident it is cancer. Treatment will depend on how the pathology comes back from surgery. Praying for no lymph involvement!

My surgery is set for November 20th.

There are many on this forum that were ned and had a single lung met. Had surgery and have been ned since. So you can beat this once again. I'll be praying everything goes well. What makes the doctor sure it is cancer? Is there a chance the biopsy could come back negative?

susie0915 wrote:There are many on this forum that were ned and had a single lung met. Had surgery and have been ned since. So you can beat this once again. I'll be praying everything goes well. What makes the doctor sure it is cancer? Is there a chance the biopsy could come back negative?

The doctor is confident it is cancer based on features of the nodule. It made than doubled in size over 6 months,is in the lower lobe, and is round in appearance. There is stil a wildly unlikely chance that it is something else, which will be determined by a biopsy on Tuesday. We are praying for the unlikely chance of it not being cancer, but preparing for round 2 of the fight.

There always is a chance. But like I said many have been in your situation and had surgery and been ned since. You are in my prayers.