Ct scans

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Buckeye
Posts: 109
Joined: Mon Jan 18, 2016 7:02 pm

Ct scans

Postby Buckeye » Sun Oct 29, 2017 9:56 am

I don’t understand how things change from one scan to the next. I just received my 2 year annual scan and I am still cancer free. No evidence of metastatic disease. They did however note I have a 1.5cm nodule on the right lobe of thyroid and 2mm kidney stone. My previous scans have both mentioned a liver cyst and a nodule in my lung. This scans says both are clear? Do these things just pop up and disappear like magic? I am glad I’m cancer free, but this thyroid nodule is bugging me. Was it there on previous scans and no one mentioned it? 1.5cm seems big to me, but I guess it’s nothing since they didn’t mention it in the impression notes. How do the other nodules just disappear? They have been stable for years? I’m just frustrated with these ct scans picking up every little nit picking thing and trying to scare me to death.
Dx 10/20/15 stage 1 T1N0M0 1.3cmx1.1cmx1cm low grade ( well to moderately differentiated) Rectal cancer age 47
Loving Husband and father of two girls age 19 & 15 Sole income provider
CEA <0.5
CT, MRI and PET show no metastatic spread
LAR Laparoscopic TME 11/30/15 with Illo
Pathology clean no lymph node or vascular involvement. Confirmed Stage1
No chemo/rad cancer free now and forever.
Illo reversal 01/26/16

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Ct scans

Postby susie0915 » Sun Oct 29, 2017 11:29 am

I just emailed my oncologist about the same type of thing. It said stable thickening in adrenal gland, but no previous scan mentioned it before. I also have a small 4mm lung nodule that was seen was mentioned in may, 2017 scan and repeat scan 3 months later showed no change, so being watched. The impression said no evidence of metastatic disease as well. My oncologist just responded by saying radiologists word findings differently and may report something that another would not. So I decided to just be happy there was no evidence of disease and if there was something suspicious it would be mentioned. As, when the lung nodule was seen last may the radiologist recommended even though it is nonspecific because of cancer history should be monitored. Congrats on no evidence of disease, and focus on that.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

mhf1986
Posts: 158
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: Ct scans

Postby mhf1986 » Sun Oct 29, 2017 12:41 pm

We've had 2 oncologists tell us that radiologists are hyper about mentioning things, almost like they are trying to one-up the last guy. I wonder how much of it is lawsuit driven: if they don't mention it then there's a potential lawsuit if it is something later.

We've also been told that growing 1mm for lung nodes in 3 months is a measuring issue because of movement. My favorite was when the oncologists said the radiologists had too much coffee and there was too much drama in the surgery center. But I agree, reading those reports is totally scary, I don't know what to worry about some days. Our next report is tomorrow night so we'll see again!
Caregiver to DH, dx @ 50, mets to liver/lungs, MSS, wild
9/16 CEA 114, blockage, left hemi, perm. colostomy
11/16 port in, FOLFOX + Avastin
6/17 CEA 15, 5FU + A only due to neuropathy
11/17 CEA 38, CAPOX + A
1/18 CAPOX = hi bilirubin/bad hfs, back to FOLFOX + A
5/18 growth; Vectibex + 75% Irinotecan
7/18 CEA 23, shrinkage
10/18 CEA 28, growth of 2 liver tumors/shrinkage of few and lung nodes
11/18 Lonsurf, looking at spheres, proton, trials
11/19/18 Peace

crazylife
Posts: 256
Joined: Wed Dec 30, 2015 11:29 am

Re: Ct scans

Postby crazylife » Sun Oct 29, 2017 1:23 pm

It drives me mad! 7 lung nodules one scan and now only 3. I am grateful for that, but it drives me mad. I do think it depends on the radiologist.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

mpbser
Posts: 953
Joined: Wed Apr 19, 2017 11:52 am

Re: Ct scans

Postby mpbser » Sun Oct 29, 2017 4:49 pm

I'm very skeptical about CT scans. None of my husband's scans ever showed his liver masses and completely missed a 6-7cm mass in his transverse colon at the juncture of the ascending colon! Going forward, we are not having CT scans, at least not at our local hospital where the Radiology Department seems to be lacking in the highest quality machinery and skillful radiologists.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
low grade
1st primary T3 N2b M1a
Stage IVA
8/17 Sub-total colectomy
2nd primary 5.5 cm T1 N0
9 of 96 nodes
CEA: < 2.9
MSS
Lynch no; KRAS wild
Immunohistochemsistry Normal
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly bled to death
6-7 '19 5FU 4 cycles
NED

menreeq
Posts: 70
Joined: Fri Jun 30, 2017 10:26 am

Re: Ct scans

Postby menreeq » Sun Nov 05, 2017 8:11 pm

Thyroid:
Chest CT scans usually include only part of the thyroid. Depending on where your scan starts, it could have not been in the field of view of prior scans. Alternatively, someone could have seen it but declined to mention it because it didn't look suspicious (low density lesions in the thyroid are very common and better evaluated with ultrasound). Then, they could also have just missed it. If you're worried, ask for a thyroid ultrasound. The caveat is that lots of these thyroid lesions end up being biopsied because telling benign from malignant based on imaging is really hard.

Lung nodules:
If very small, these may not be seen from scan to scan depending on the slice thickness of the CT. It also depends on how much of a breath you take in. Some radiologists don't bother mentioning every ditzel because nodules less than 4 or 6 mm (depending on which guidelines are being followed) are "nonspecific" and could be nothing to worry about -- post infectious, post inflammatory, etc. They are too small to biopsy and too small to see on PET. Each radiologist decides how detailed to be in general.

Kidney stones:
These can definitely disappear from scan to scan (or reappear!). Drink lots of water.

As to why one radiologist does one thing and another does another. I doubt it is because one is trying to "one up" the other. Most are trying to do what is best for the patient. Some may think not mentioning every little thing will decrease patient anxiety. Others think that it is best to mention everything so that attention is paid to those things on the next scan. It is a matter of style.

CT is not the best test for most cancers of the gastrointestinal system. Endoscopy and colonoscopy are standard of care. CT colonography has yet to surpass colonoscopy as the screening test of choice.
Stage IIA rectosigmoid CC (T3N0M0)
Dx 6/5/17 @age 41ls
Workup: c-scope, EUS, rectal MRI, CT C/A/P
AdenoCA 5.5cm, WHO Grade 2, 0/22 LN, no distant mets
CEA 1.9 (6/5/17), 0.8 (2/28/18), 1.0 (9/17/18), 1.1 (4/16/19), 1.0 (9/24/19), 1.7 (7/8/20)
No lymphovasc/perineural invasion, clear margins
MSI intact, OncotypeDx RS 7
Lap sig colectomy 6/23/17, no ileo/colostomy
Genetics neg for mutations, 4 VUS
Xeloda monotherapy 8/13/17-1/22/18
PET/CT 3/21/18 NED
CT C/A/P 9/17/18 NED, 3/8/19 NED, 9/19/19 NED, 5/13/20 NED


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