4(ish) year colonoscopy results

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

4(ish) year colonoscopy results

Postby NZJay » Fri Oct 27, 2017 4:32 pm

Hi All,

Just a quick update.
2 years ago I had a post-chemo scope which showed a bunch of (7 or so) new polyps, so I had another scope scheduled for last week.
Results; only 1 tiny polyp which they said they're 99% sure isn't pre-cancerous!
This means no scopes for 5 years :mrgreen: :mrgreen: .

Throwaway comment; last time they used a technique where they heavily inflated my bowel, and it was quite painful. This time they used what they call the "water technique" and it didn't hurt at all.
This was done with no sedation aside from my usual klonopin, as I had noone to pick me up after the procedure and needed to rush back to work.
So yeah - really happy the procedure is being improved!

Next milestone for me is my 4 year scan, which is due next month but realistically won't happen until January or February.

Overall feeling good. My fatigue issues have improved a little, and bowel control is good.
The only daily issues I still face are psychological; particularly in developing and maintaining new relationships. Unsure if i have mentioned before, but I was dx with ptsd as a result of the cancer treatment. In a practical sense, I have emotional shutdown periods and get really fatigued by being around people for too long at a time.
I manage my stressful job really well, and also raising my daughter by myself is going fine; but outside of that I can't seem to manage much.
But hey I have a dog so who really cares :D

Best wishes to all
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: 4(ish) year colonoscopy results

Postby stu » Fri Oct 27, 2017 5:14 pm

Best news . Glad to hear you and your daughter are doing so well .
When the times right the other issues will slot into place :D . That I am sure of .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: 4(ish) year colonoscopy result

Postby Thetoad » Fri Oct 27, 2017 5:36 pm

Good to read you are ok. Stressful time when the scans etc. are due. As you know, I'm about the same time frame as you. I'm 4 years on 13 Nov and the colonoscopy was planned for October, but may not be until January. No CT scans were planned. Good luck with everything and give your dog a pat from Dunedin!
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

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Robino1
Posts: 463
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: 4(ish) year colonoscopy results

Postby Robino1 » Fri Oct 27, 2017 6:20 pm

Good news for sure!

Sorry about the PTSD though. Hopefully that will resolve with time(?)

Hey, ya got a dog...right?!?! :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: 4(ish) year colonoscopy result

Postby NZJay » Sun Oct 29, 2017 4:28 am

Thetoad wrote:Good to read you are ok. Stressful time when the scans etc. are due. As you know, I'm about the same time frame as you. I'm 4 years on 13 Nov and the colonoscopy was planned for October, but may not be until January. No CT scans were planned. Good luck with everything and give your dog a pat from Dunedin!


Thanks buddy, and same to you.
Just to clarify - how many annual CT scans did you have? We seem to scan much less than in the USA.
I had to battle to get them to agree to a 4 year scan (my next one).
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

Thetoad
Posts: 165
Joined: Mon Nov 23, 2015 2:46 am
Location: New Zealand

Re: 4(ish) year colonoscopy results

Postby Thetoad » Sun Oct 29, 2017 2:15 pm

Hi there. I've had 3 CT scans, but the first was to have a look before surgery and the second the day after to check. They saw two pockets of infection in the latter which were cleared up with antibiotics. The third was a surveillance one 1 1/2 years after surgery. My first colonoscopy was a year after surgery and I'm nervously waiting for one now three years later, I.e 4 years post surgery. As far as I know there are no more CT scans planned. i don't know about future colonoscopies, it probably depends on what they find or hopefully not find! To complicate things a bit, I had my gallbladder out 5 months ago. I'm seeing a dietician this afternoon as my BM's are not great and being me I think something is wrong. But with over half my bowel gone and no gallbladder I guess that's to be expected? And they say tumours take 10 years or so to develop, so don't panic. 4 years is a good milestone too. Oh, one more thing, CEA tests went from 3 monthly, then 6 monthly and the specialist nurse appts are now yearly. All scans, the colonoscopy and CEA tests have been normal so far. Enough about me, I hope all goes well for you with everything to come. Say hi to your daughter from me. :D
Emergency extended rt hemi November 2013.
Complete blockage, small perforation.
Stage 2a.
T3N0M0
22 Lymph nodes clear.
No bag.

Yearly appts appts and 6 monthly CEA tests.
Incisional hernia repair, mesh Nov. 2014.
Cellulitus
CEA 1.4 on 28/7/17
27/5/17. Gallbladder removed, open.
Good consultation Feb. 2017
CEA 1.7 on 16/11/17 colonoscopy ok Jan. 2018 :)
Nurse pleased, March 2018. CEA 1.8. One more CEA test and hopefully last appt in November, 2018.
Prostate cancer, Gleason 7 (3+4) Sept. '18.

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: 4(ish) year colonoscopy results

Postby Lee » Sun Oct 29, 2017 3:19 pm

Sorry about PTST. That can be a real issue at times.

And wow, 5 yrs out until your next scope. I'm only allowed to go 3 yrs out so far.

Congratulations on NED status :D

All the best,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 4(ish) year colonoscopy results

Postby DarknessEmbraced » Mon Oct 30, 2017 1:49 pm

Congratulations on good colonoscopy results and hope you get good scan results as well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

fumaros
Posts: 273
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: 4(ish) year colonoscopy results

Postby fumaros » Tue Oct 31, 2017 10:28 am

It's good to hear from you and congratulations on the good news. It's hard to be good at "life" after dealing with a terrible ordeal. All the best with the next scan.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
Stage IV, Peri mets 5/2019
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9, 3/19 -5.8, 4/19 -10
FOLFOX began 6/24/16 - 11/25/16, FOLFIRI - 5/10/19
10 round FOLFOX, 2 round 5-FU & Leucovorin, 1 round FOLFIRI
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

SweetC80
Posts: 103
Joined: Fri Sep 01, 2017 1:28 pm

Re: 4(ish) year colonoscopy results

Postby SweetC80 » Tue Oct 31, 2017 10:30 am

Congratulations and great news! Sorry to hear about the PTSD struggles.
My Mom
12/16 Stage IIIb Rectal Ca CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon, Rectum & Anus removed Perm Ileostomy Bag
7/17 FOLFOX
9/17 Stage IVb 9cm Liver Met & 7mm Lung Nodule CEA 197
9/17 FOLFIRI CEA 160
10/17 Confirmed KRAS Pos CEA 210
11/17 Met growths Liver 10cm & Lung 8mm CEA 425
12/17 FOLFOX again Met growths Liver 13cm & Lung 1cm CEA 405
12/17 Xifaxan due to Hepatic Encephalopathy
12/17 New 2cm liver Met
1/18 CEA 992
2/8/18 Passed Peacefully

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: 4(ish) year colonoscopy results

Postby CRguy » Tue Oct 31, 2017 11:58 am

NZJay wrote:The only daily issues I still face are psychological; particularly in developing and maintaining new relationships. Unsure if i have mentioned before, but I was dx with ptsd as a result of the cancer treatment. In a practical sense, I have emotional shutdown periods and get really fatigued by being around people for too long at a time.

Congrats on the good scopin' Jay, that's what we like to hear, here !!!!

About the fatigue / emotional / PTSD stuff = yup
sounds like me ... BUTT since I also have grandkids and a dog = also like you, I seem to be rolling along
a little better the further out I get

Cheers my friend
Thanks for the update
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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