Caat55 wrote:Hope your scan went well today. I am so impressed by your attitude. My friends are bringing me food, lots of casseroles, soups. I am going to avoid the cheese as well, it makes things slow down.
There is a private company here that does the genetic testing, about 400 dollars. I can't decide about doing it. Would I do anything differently?
Atoq wrote:Hi! The scan went fine but I don't know when I will get the results, it looks like I am soon having surgery for the lung and I hope this time it will be endoscopic. I guess I will be more informed after the meeting with the surgeon on Friday. I would do the DNA testing mostly for my kids, but it is not urgent.
I hope that your lung surgery is endoscopic and resolves the problem. You are inspiring and I wish you much success dealing with all of these treatments and surgeries. I had DNA testing last year and they found nothing, tested for 500 mutations. I asked the doctor if that was good or bad news. He said it was good for using EGFR therapy but not good for other immunotherapies. I am MSS which means Opdivo and Keytruda are not effective from what I have read.
I shared the DNA results with my kids but still encourage them to go for early screening when they get older.
Take good care!
Atoq wrote:Thanks Shana! I hope you can also have surgery soon.
Once I wanted to do the genetic test of 23and me but, being in Norway, I could only get information about genealogy and not health. I wonder if it is possible to do this multiple test for genetic disposition now.
I am resigned to living with the colostomy if resection isn't possible but I'd rather have the tumor removed regardless. Cancer free with a colostomy is acceptable, it's all about survival with quality of life.
Thank you for the good wishes
Caat55 wrote:Congrats Claudia on the good news. If you don't have to do mop chemo, when do you get the ileo reversed? Did they give you any information about what's going on with your bladder? I am full of questions. My doctor yesterday was telling us about the differences in treatment in US and Europe, a guess this is one of them.
When is the biopsy scheduled? It's hurry and wait isn't it?
BTW where in Norway are you? My husband used to live there and we have visited.