Rectal cancer stage IV

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Atoq
Posts: 393
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Sun Oct 11, 2020 3:01 am

NHMike wrote:Sounds great. I need to schedule the second one of those (I'm two months overdue and waiting another month as my hospital had an COVID cluster). I should look up what the first one is.

They do the second one in-between scans.

Hi Mike,

I think the right term is ultrasound?

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

NHMike
Posts: 2533
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Fri Oct 16, 2020 8:19 pm

Atoq wrote:
NHMike wrote:Sounds great. I need to schedule the second one of those (I'm two months overdue and waiting another month as my hospital had an COVID cluster). I should look up what the first one is.

They do the second one in-between scans.

Hi Mike,

I think the right term is ultrasound?

All the best

Claudia


Ah, I certainly know what that is.

The numbers in the US are spiking again and I'm somewhat worried to go to the hospital but should go with taking precautions. I see that Europe is having problems as well. I am giving some consideration to being seen in a facility that isn't as busy. Some of the Boston Hospitals have satellites and they are building more of them.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 393
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Sat Dec 12, 2020 4:26 pm

I just got the resuts of my CAT scan and everything is fine.
I also had some problems with the wound where the stomy was that was not healing, and they found a surgery stitch that was still under the skin after 3 years!
:D

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

NHMike
Posts: 2533
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Sun Dec 13, 2020 12:26 am

Atoq wrote:I just got the resuts of my CAT scan and everything is fine.
I also had some problems with the wound where the stomy was that was not healing, and they found a surgery stitch that was still under the skin after 3 years!
:D

All the best

Claudia


Good to hear that things continue to go well.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 393
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Mon Mar 22, 2021 3:34 am

Hi! Just checking in, I had my three years’ scan in February and everything is still fine.

All the best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED

Gravelyguy
Posts: 360
Joined: Thu Jul 05, 2018 6:03 pm

Re: Rectal cancer stage IV

Postby Gravelyguy » Wed Mar 24, 2021 8:45 pm

Awesome news! I am just over 3 years and am now down to going for yearly scans. It feels great!


Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!

NHMike
Posts: 2533
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Thu Mar 25, 2021 9:16 am

Atoq wrote:Hi! Just checking in, I had my three years’ scan in February and everything is still fine.

All the best

Claudia


No news is the best news. Keep on running!
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 393
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Sat Mar 27, 2021 4:28 pm

NHMike wrote:
Atoq wrote:Hi! Just checking in, I had my three years’ scan in February and everything is still fine.

All the best

Claudia


No news is the best news. Keep on running!


I ran both yesterday and today, ca. 8 km while my son is training gymnastic. Thanks Mike and Dave!
Yearly scan is really back to normal :)
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED


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