Rectal cancer stage IV

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Atoq
Posts: 350
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Nov 21, 2018 1:45 pm

I suspect I will have the next in 3-5 years, but I have a rectoscopy and CAT scan scheduled in February.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Rectal cancer stage IV

Postby Lee » Wed Nov 21, 2018 1:56 pm

Atoq wrote:I am here drinking coloscopy prep, I will have it tomorrow, and I am very happy since I never got one (the tumor was blocking the scope).

My older dog is not able to stand up anymore. He is over 13 and has a chronic illness typical for the breed (intestinal lymphagiectsia). So nobody was expecting him to live so long. But still, it is incredibly sad.

All the best

Claudia


Glad to hear your colonoscopy went well. So sorry to hear about your dog. My 13 yr old dog passed away in June of this year. Last week, we had to put down our 18 yrs cat. It's been a rough year. This cat, had a paw in raising our son, and our son feels like he lost a brother.

Take care,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

NHMike
Posts: 2334
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Wed Nov 21, 2018 1:57 pm

Atoq wrote:I suspect I will have the next in 3-5 years, but I have a rectoscopy and CAT scan scheduled in February.

Claudia


That's a much lighter protocol than we have here though it appears that things may be moving in the direction of less surveillance. Over here, I've heard that colonoscopies are annual, scans every six months, bloodwork every three months. My oncologist is saying that he likes to do scans every year. We're doing 9 months to split the difference but I'm fine with doing them annually after that. I have to talk to him or the surgeon about the colonoscopies. We were going to have the surgeon do them but I'm thinking of doing them locally with the GI guy who did the first and second. Going into Boston for minor surgery may be overkill.

I would guess that your lighter surveillance would make it easier to not think about cancer so much.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
Atoq
Posts: 350
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Nov 21, 2018 2:59 pm

Yes, but I have done rectoscopy and CAT scan first every three months and then every 6 months. I guess because I am a stage IV. The thing is that colon has been clear, no polips, so reoccurrence would be in the rectum and then perhaps a rectoscopy is enough? A new polip in the colon would take some time before becoming cancerous.

Atoq
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Tue Nov 27, 2018 12:17 am

I am sorry to hear about your dog, their unconditional love goes along way when things are rough. Take care. Glad to hear your colonoscopy went well. My oncologist suggest I schedule my first one since the original diagnosis.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
Atoq
Posts: 350
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Nov 28, 2018 3:18 pm

I had to put my dog to sleep. I miss him a lot.
Otherwise things are fine, biking to work (with spikes), training strenght and running. Working full time. No anxiety, so I don’t have much to write, but I read and try to answer when I feel I can contribute.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Mon Dec 10, 2018 10:15 pm

Hi Claudia,
I hope that a little time has helped ease the pain of losing your dog, having to walk mine is what gets me through the day sometimes when all I want to do is come home and go to bed. Take care, Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
Atoq
Posts: 350
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Feb 06, 2019 4:56 am

Hi again,
today I had another scope and got the results from the last CAT scan. Everything is unchanged. Next scan in 6 months. Otherwise I am fine, here it is very cold and very good skiing conditions.

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Wed Feb 06, 2019 11:17 pm

Good to hear! Enjoy the snow and skiing.
Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

User avatar
Atoq
Posts: 350
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Sat Jun 22, 2019 6:09 am

Hi! Just dropping to say hallo. It is one year now since last surgery to remove a lung metastasis. Everything is still fine, I will have the next control in August, but that will be an x ray and ultrasound. No CAT scan this time. So, no news, good news! Soon leaving for a long drive to Italy and 6 weeks holiday with family (also my dog and cat), runnng, hiking and swimming. Carpe diem as usual! :)

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

User avatar
Atoq
Posts: 350
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Fri Sep 13, 2019 12:14 pm

Today I got a scope and the results of the last cat scan and ecography. Everything is fine, CEA is 1.2. Next control in 6 months. :D

Last week I ran a 10 km race, the same I ran two years ago before diagnosis. This time in 47 min, not quite my best time, but I am still very happy given the little training during the hot Italian summer.

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2

MeAndMine
Posts: 149
Joined: Mon Aug 05, 2019 2:40 pm

Re: Rectal cancer stage IV

Postby MeAndMine » Fri Sep 13, 2019 2:11 pm

Wonderful news!
F 56 non-smoker
8/5/2019 - Colonoscopy - 4-5 cm rectal mass, 2-3 cm proximal to anal verge and 6mm polyp
8/13/2019 - CT - No mets
8/19/2019 - Rectum: Adenocarcinoma arising from tubulovillous adenoma. Descending colon: tubular adenoma
8/23/2019 First visit with surgeon
8/26/2019 First visit with oncologist
8/26/2019 MRI
CEA 8/19/19=3.9, 8/26/19=7.1
9/6/2019 - T3N2a
9/11/2019 - Radiation begins - 5.5 weeks along with oral capecitabine

NHMike
Posts: 2334
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Fri Sep 13, 2019 3:50 pm

Atoq wrote:Today I got a scope and the results of the last cat scan and ecography. Everything is fine, CEA is 1.2. Next control in 6 months. :D

Last week I ran a 10 km race, the same I ran two years ago before diagnosis. This time in 47 min, not quite my best time, but I am still very happy given the little training during the hot Italian summer.

All the best

Claudia


It sounds like life is good.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Caat55
Posts: 671
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Sat Sep 14, 2019 1:20 pm

That's fantastic. Congrats!

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19


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