Rectal cancer stage IV

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Caat55
Posts: 648
Joined: Sat Dec 23, 2017 6:01 pm

Re: New on the forum

Postby Caat55 » Thu May 24, 2018 10:30 am

Interesting about the lupine, my husband and I wondered about that ashe didnt remember seeing it before.
Take Care.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

Daniellabella
Posts: 41
Joined: Wed May 23, 2018 10:32 pm

Re: New on the forum

Postby Daniellabella » Thu May 24, 2018 4:40 pm

Does anyone here know what a “non-circumferential” Timor means?

My husband’s report mentions he has a 6 cm mass about 10-11 cm from the anal verge.

Is non-circumferential good, bad or neither?

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Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri May 25, 2018 4:03 am

Daniellabella wrote:Does anyone here know what a “non-circumferential” Timor means?

My husband’s report mentions he has a 6 cm mass about 10-11 cm from the anal verge.

Is non-circumferential good, bad or neither?


I am not a doctor, but I think it is a good think that is not growing all around the rectum wall. Circumferential tumors tend to be more advanced, does the report say if it is posterior, anterior or lateral? Staging is anyway the most important predictor of prognosis.

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

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Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri May 25, 2018 4:10 am

Finally I got to talk to the surgeon and my last CAT scan showed no changes, still one solitary metastasis in one lung, 11 mm in diameter (was 10 mm last time). :)

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

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Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri Aug 24, 2018 3:44 am

Just finished with the CAT scan, but I will get the answer in almost three weeks (12th of September). Well in Italy we say «no news, good news». Luckly I am not anxious yet.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

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Shana
Posts: 401
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: New on the forum

Postby Shana » Fri Aug 24, 2018 7:39 pm

Atoq wrote:Just finished with the CAT scan, but I will get the answer in almost three weeks (12th of September). Well in Italy we say «no news, good news». Luckly I am not anxious yet.

Claudia


Hope they are good results! I know how hard it can be too wait.

I've had a fair amount of progression and waiting for insurance authorization for SIRT on liver mets... 5 weeks of no chemo and envisioning the tumors having a wild party but I feel fine so I'm trying not to think about it. It's weird but I have less anxiety now because there is a plan in place.

Take care!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
Irinotecan and Erbitux ran it's course. CEA rising
Primary tumor invaded tail of pancreas and spleen. Liver mets major concern
Y-90 radioembolization on 9/17/18, liver enzyymes have dropped. 10 Radiation treatments to primary tumor completed too. CT scan Nov to assess overall situation...

User avatar
Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Sep 12, 2018 10:35 am

A little update: the CAT scan was clear and CEA is 1.6. I had a rectoscopy today and that was was also ok. Next scan in January 2019. Overall I feel fine, I am running, training strenght and working full time. Still avoiding meat, diary products and sugar as much as I can. Life after reversal is much better than I expected, only mild clustering sometimes and I can eat everything.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

NHMike
Posts: 1940
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Wed Sep 12, 2018 10:50 am

Atoq wrote:A little update: the CAT scan was clear and CEA is 1.6. I had a rectoscopy today and that was was also ok. Next scan in January 2019. Overall I feel fine, I am running, training strenght and working full time. Still avoiding meat, diary products and sugar as much as I can. Life after reversal is much better than I expected, only mild clustering sometimes and I can eat everything.

Claudia


That's a great report.

Clear across the board.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Caat55
Posts: 648
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Wed Sep 12, 2018 7:32 pm

That's great Claudia!!!! Keep on going!!!!

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds
CT NED 9/2018
PET NED 12/18
Clear Colonoscopy 2/19

heiders33
Posts: 338
Joined: Sat Nov 04, 2017 11:08 am

Re: Rectal cancer stage IV

Postby heiders33 » Wed Sep 12, 2018 7:51 pm

Congrats! I can’t wait to get there one day!
36 year-old female
May 2017: Dx rectal cancer T3N2M0
MSS, KRAS G12D
6/17: 28 days chemorad
9/17: LAR/loop ileostomy
10/17 - 2/18: XELOX six rounds
3/18: reversal
5/18: CT liver spot, blood counts normal
8/18: Abnormal PET, CEA 2.4
9/18: liver resection/HAI pump
10/18: Clear CT/sigmoidoscopy
10/18 - 4/19: 6MO FUDR/5FU

User avatar
Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Sun Nov 18, 2018 1:00 pm

I am here drinking coloscopy prep, I will have it tomorrow, and I am very happy since I never got one (the tumor was blocking the scope).

My older dog is not able to stand up anymore. He is over 13 and has a chronic illness typical for the breed (intestinal lymphagiectsia). So nobody was expecting him to live so long. But still, it is incredibly sad.

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

NHMike
Posts: 1940
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Sun Nov 18, 2018 2:46 pm

I should schedule one. My last was about 16 months ago and the Onc didn't say anything about it. Sounds like you're doing fine.

Losing a pet is rough stuff.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

mpbser
Posts: 854
Joined: Wed Apr 19, 2017 11:52 am

Re: Rectal cancer stage IV

Postby mpbser » Sun Nov 18, 2018 5:18 pm

I am so sorry to hear about your doggie, atoq. I don't have children but I have a 7 year old dog who is the world to me. To me, he is not only family, but my baby. I send prayers his (your dog's) way.
Wife 4/17 Dx age 45
5/17 - Lap left
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor DNA variants: MTOR, APC, TP53
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 met in liver
Resection & HAI Mar 7
Folfiri & FUDR started Apr 1

User avatar
Atoq
Posts: 329
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Tue Nov 20, 2018 1:06 pm

The coloscopy went fine, everything is normal and it was done in 20 minutes, without sedation or any other form of pain control. It was really much easier than I expected.

Claudia
45 year old, mother of 2
Dx rectal cancer 10.2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan, ok
12.09.18, 06.02.19 scope, ok. CEA 1.6
19.11.18 clear coloscopy

NHMike
Posts: 1940
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Tue Nov 20, 2018 1:16 pm

Atoq wrote:The coloscopy went fine, everything is normal and it was done in 20 minutes, without sedation or any other form of pain control. It was really much easier than I expected.

Claudia


Good to hear. I didn't know that it was so quick. I was under for the two that I've had. So you're good for a year there?
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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