The Colon Club

Hej Claudia min skandinaviske ven!

I’m sure you’re gonna beat this, Norwegian Viking

I have a question, where you testet positive for lynch syndrome since they decided to clean out the downstairs apartment? Because you are under 50 you should be able to get a genetic test done, it would be a great marker for the future and for your kids. The hospital have probably already talked about offering a colonoscopy to your kids from age 25!

Hei,
I was tested negative for Lynch, but this is the only genetic test they have done yet. I will update the signature. My father had colon cancer when he was 63.

Actually, I am Italian, but I lived in Norway for the last 15 years

All the best

Claudia

A week has gone after the last chemo and radiotherapy session and I am feeling much better, just a bit of nausea which started now, but I guess both Xeloda and radio are still at work in my body.

I am a bit worried about the CT scan to my lungs in two weeks. It is to see if the 8 mm node changed with Xeloda, which would restage me as 4.

I see that when I can train strength or dance I am much more positive, while spending a lot of time at home makes me more negative.

I am also worried about adjuvant chemo, I guess I should just focus on these two months of break and then the operation, but it is difficult to concentrate myself on the present.

Best

Claudia

One step at a time. The radiation continues to work for at least 8-12 weeks after treatment. After my chemo/radiation all that was left was scar tissue. Surgeon said I may not have to do chemo after surgery, but there was minimal residual cancer cells. I did 6 rounds of Xelox. Use this time to try and get stronger and take care of yourself to help with recovery after surgery. I'm glad you are feeling better. It does take a couple weeks to get feel normal again, and those last couple weeks of radiation can be brutal.

Atoq wrote:A week has gone after the last chemo and radiotherapy session and I am feeling much better, just a bit of nausea which started now, but I guess both Xeloda and radio are still at work in my body.

I am a bit worried about the CT scan to my lungs in two weeks. It is to see if the 8 mm node changed with Xeloda, which would restage me as 4.

I see that when I can train strength or dance I am much more positive, while spending a lot of time at home makes me more negative.

I am also worried about adjuvant chemo, I guess I should just focus on these two months of break and then the operation, but it is difficult to concentrate myself on the present.

Best

Claudia

We went on a vacation in-between the end of chemo/radiation and surgery and it was quite nice. I wouldn't have been able to enjoy a vacation between surgery and Adjuvant Chemo. It is great to get out and do something which is why I prefer to go into the office to work and I'm enjoying it now because I will likely work from home while on Adjuvant.

You have to take one step at a time. You get stronger with each step. There are times when you wonder how you will make it through the next step and then you're there and you do.

They are going to operate me this evening, they want to make the loop ileostomy because my tumor is blocking the passage. Open chirurgy...

All the best

Claudia

Atoq wrote:They are going to operate me this evening, they want to make the loop ileostomy because my tumor is blocking the passage. Open chirurgy...

All the best

Claudia

Good luck!

Atoq wrote:They are going to operate me this evening, they want to make the loop ileostomy because my tumor is blocking the passage. Open chirurgy...

All the best

Claudia

Best of luck and we’ll see you on the other side. Open surgery is no piece of cake, at least for me.

Good Luck. Hope all goes well.

Thinking about you and praying it is a success.

I am now at the hospital with a ileostomy and a big cut, did not have much pain yet, but the needle in the troat for IV is really annoying. I have been walking in the corridor a bit, drank water and I am trying not to think that I have to go through all this again in 6-7 weeks

Claudia

Atoq wrote:I am now at the hospital with a ileostomy and a big cut, did not have much pain yet, but the needle in the troat for IV is really annoying. I have been walking in the corridor a bit, drank water and I am trying not to think that I have to go through all this again in 6-7 weeks

Claudia

You're doing quite well to be up and about so soon after open surgery.

Glad you're feeling pretty good. It'll get easier. Keep walking.

I always try to view the setbacks as just one more step to the end goal
Recover
Get your strength back
Undergo chemo (maybe)
Ascertain what is happening with the spot on your lung
Get a plan for that
Remain NED

This is just a blip on the road to that

Kiwi

kiwiinoz wrote:I always try to view the setbacks as just one more step to the end goal
Recover
Get your strength back
Undergo chemo (maybe)
Ascertain what is happening with the spot on your lung
Get a plan for that
Remain NED

This is just a blip on the road to that

Kiwi

Thanks a lot for your replies. And you are right Kiwi, one step at time, it is just that this emergency surgery is an extra step and I have to repeat it in 6-7 week to remove the tumor (now they just made the ileostomy).
But I am already on my feet going and eating, so at least I will know what is awaiting me next time.

Best

Claudia