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Atoq
Posts: 277
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri Dec 15, 2017 2:53 am

Shana wrote:
I stopped taking anticoagulant injections when I was released from the hospital. Is that standard protocol for you to take them where you received your surgery?

Take Care!

Shana


It is not standard, normally you continue for theee weeks but they said that rectal cancer give an increased risk. Anyway I will ask them next time if they have considered also my age and the fact that I move all the time (12000 steps yesterday, just being inside). The injection doesn’t bother me, but there are risks associated with anticoagulants too.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

Aqx99
Posts: 402
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: New on the forum

Postby Aqx99 » Fri Dec 15, 2017 4:52 am

Shana wrote:
Atoq wrote:Thanks a lot Shana. I am home now and the main problem is to understand how much I can do and I should not do / rest.

The recovery has been really quick and I went home on Monday without any painkiller, just anticoagulant injections, which I have to do till the next surgery in February.

The management of the colostomy has been until now easy and I use the Sensura mio one piece bags from Coloplast.

I still feel some pain when gas or stool come out but I hope it is because the tissue is still healing.

Tomorrow I will go to remove my 30 staples and have a CT scan of the chest.

Claudia


I think you're doing great Claudia! It sounds like you were in excellent shape before surgery which is likely why you are healing so quickly. I am sure you are getting a lot of advice so I will just say listen to your body and take it easy when you feel fatigued.

I did not pick up anything over 10lbs for about 6 weeks as recommended by my surgeon. That area is going to be sore while it's healing which is to be expected.

It's taken me awhile but I've learned a lot about my digestive system and know that a meal stimulates things so I take that into account when traveling for a distance so I don't need to make a stop on the road.

I stopped taking anticoagulant injections when I was released from the hospital. Is that standard protocol for you to take them where you received your surgery?

Take Care!

Shana


I only had the anticoagulant injections while I was in the hospital. They did not have me continue them after I was discharged.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

NHMike
Posts: 1537
Joined: Fri Jul 21, 2017 3:43 am

Re: New on the forum

Postby NHMike » Fri Dec 15, 2017 5:02 am

I had a total of 28 injections, 4 in the hospital and the rest I did myself.

12,000 steps per day is excellent. I’ve been doing about 7,000 per day average but am working full time.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

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Shana
Posts: 394
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: New on the forum

Postby Shana » Sat Dec 16, 2017 3:17 am

Claudia,

You are a warrior! 12,000 steps is amazing, I am getting in 5-6K in addition to working out with a trainer twice a week at the gym. Always best to follow your dr's advice but they may have no idea how active you are. A lot of people turn into couch potatoes after surgery but I vowed to keep moving as long as I wasn't puking! :lol:

Sounds to me like you're on the fast track to recovery but don't overdo it :)

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

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Atoq
Posts: 277
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Wed Dec 20, 2017 4:14 pm

Today I went to the hospital to get my CT scan result and they say the lesion in the lung is still the same, which was supposed to be good.

But it looks suspect and they think it is a metastasis anyway and they want to remove it after the main surgery.

I guess I can celebrate with red wine (any occasion is good) that is not larger (still 0.8 cm) and only one, but I don’t understand why before they told me that if it was still there it was not a metastasis and now they think it is.

Of course the doctor is not the same, but the report says exactly the same size, shape and «malignantsuspect».

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

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Atoq
Posts: 277
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Wed Jan 24, 2018 9:38 am

Hi again! Today I had the meeting with surgeon, stomy nurse, anestesy nurse and so on and I got the results for the cat scan and mr.

Both show good response to chemoradiation but they did not give me much details. I was scheduled for surgery on Monday, but suddenly they called me and surgery is planned for tomorrow!

So now I am drinking picoprep at the hospital and had to pack my bag in a hurry. I will keep you update :)

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

NHMike
Posts: 1537
Joined: Fri Jul 21, 2017 3:43 am

Re: New on the forum

Postby NHMike » Wed Jan 24, 2018 9:43 am

Atoq wrote:Hi again! Today I had the meeting with surgeon, stomy nurse, anestesy nurse and so on and I got the results for the cat scan and mr.

Both show good response to chemoradiation but they did not give me much details. I was scheduled for surgery on Monday, but suddenly they called me and surgery is planned for tomorrow!

So now I am drinking picoprep at the hospital and had to pack my bag in a hurry. I will keep you update :)

All the best

Claudia


Best wishes for great results and we'll see you on the other side!
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18

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Robino1
Posts: 462
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: New on the forum

Postby Robino1 » Wed Jan 24, 2018 10:01 am

Atoq wrote:Hi again! Today I had the meeting with surgeon, stomy nurse, anestesy nurse and so on and I got the results for the cat scan and mr.

Both show good response to chemoradiation but they did not give me much details. I was scheduled for surgery on Monday, but suddenly they called me and surgery is planned for tomorrow!

So now I am drinking picoprep at the hospital and had to pack my bag in a hurry. I will keep you update :)

All the best

Claudia



Oh good luck!!!!! We will be looking for your 'after' post!!

Super happy that the response is positive. :D
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

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susie0915
Posts: 818
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: New on the forum

Postby susie0915 » Wed Jan 24, 2018 11:49 am

Good Luck. Keep us posted. Prayers coming your way.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoid/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod
7/17 no change lung nod
10/17 Clear pel/abd CT
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, clear CT pel/abd/lung nod no change

Caat55
Posts: 475
Joined: Sat Dec 23, 2017 6:01 pm

Re: New on the forum

Postby Caat55 » Wed Jan 24, 2018 2:24 pm

Hi Claudia
My surgeon said they do things different here is us then Europe. I am stage 3, have had excellent response to neoadj. therapy, now restaged to 2, and am scheduled for surgery next week. I am getting more chemo afterwards. Cookbook according to oncologist.
Susan
PS
I love Norway, miss lefsas.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

Lee
Posts: 5619
Joined: Sun Apr 16, 2006 4:09 pm

Re: New on the forum

Postby Lee » Wed Jan 24, 2018 2:36 pm

Good luck with your surgery tomorrow. Remember to walk, walk, walk, those hospital halls following your surgery.

Post when you can,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
Atoq
Posts: 277
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Wed Jan 24, 2018 3:16 pm

Thanks a lot for your wishes! :D I am now drinking the second glass of prep, much easier with colostomy, and I guess emptying it so often is sort of a training in case I will get an ileo. :wink:

I can confirm that here they do not usually give chemo after surgery, but of course it will depend on the histology results.

Best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

User avatar
Shana
Posts: 394
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: New on the forum

Postby Shana » Thu Jan 25, 2018 5:28 pm

Hi Claudia,

Thinking of you today and hoping all went well and we hear from you when you're feeling up to it.

Hugs and prayers,

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Atoq
Posts: 277
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri Jan 26, 2018 6:00 am

Hi! Everything went fine and I am now sitting and eating,the surgeon told me that they removed all the tumor and now I have an ileostomy on the left side, where the colostomy was.

Thanks a lot for your support!

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery

NHMike
Posts: 1537
Joined: Fri Jul 21, 2017 3:43 am

Re: New on the forum

Postby NHMike » Fri Jan 26, 2018 8:50 am

Atoq wrote:Hi! Everything went fine and I am now sitting and eating,the surgeon told me that they removed all the tumor and now I have an ileostomy on the left side, where the colostomy was.

Thanks a lot for your support!

Claudia


Very cool. I didn't know that they did those on the left side as well.
6/17: ER rectal bleeding; Colonoscopy
7/17: Stage 3B rectal. T3N1bM0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda +radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8
MSS, KRAS G12D
10/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx 8 cycles 12/17-6/18


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