Atoq wrote:Yesterday I had the lung needle biopsy and it was quickly done, a bit of discomfort but mostly psycologic (the feeling of being stabbed or shot by an arrow).
I got as side effect a small pneumotorax and it hurts to walk in the snow. I will get the results from the biopsy next week.
Claudia
susie0915 wrote:Did you not have chemo scheduled after your resection? I would think even without the lung nodule you would have adjuvant therapy. I guess I don't understand if they think it is a met why not remove. My nodule is too small to biopsy or do pet scan so it is being monitored, my pulmonologist told me would have to be at least 8 mm to biopsy or for pet scan to pick up, so we monitor. Granted,I don't know all the protocols but seems if it is know to be a met would be addressed.
Caat55 wrote:Claudia,
That's crazy. go back to the oncologist and push for adjunct chemo. I know things are different there but way wait and see? I thinkmost of us here get chemo after surgery regardless of clean margins and all of that.
Susan
Atoq wrote:Caat55 wrote:Claudia,
That's crazy. go back to the oncologist and push for adjunct chemo. I know things are different there but way wait and see? I thinkmost of us here get chemo after surgery regardless of clean margins and all of that.
Susan
In three months I could do four rounds of chemo, but pushing for that? I would like at least to talk to the oncologist, but I do not have a direct number, I guess I’ll have to go through the family doctor.
Claudia
Shana wrote:I'm in agreement with Susan and I know protocols are different where you are but I would think that chemo now would be beneficial. Definitely push to talk to the oncologist and be persistent. I feel your frustration! I hope you get some answers soon!
Shana
kiwiinoz wrote:Hi Claudia
With all the surgery are you doing any running? I have had a few months off serious running, and my long runs are now 10km which used to be my short runs. However I have 16 weeks until a Marathon I want to in so have started training again. Did a tempo run yesterday and really enjoyed it so let's see.
kiwiinoz wrote:Now the serious stuff. You have had Neoadjuvant and radio right, then your concern is why wait for this to grow and then remove once it is big enough. If you look at it the other way, it is not likely to spread more, it is contained, and chemo will not be an answer. In fact chemo now would mean your cancer could become immune to the treatment if you need it in the future.
kiwiinoz wrote:In my situation I had my primary rectal cancer, and lung lesion at the same time so I was given the choice by my oncologist as to if I wanted chemo or not and I had done a fair amount of reading and the school was out in that there is no proof that chemo after a lung resection provides any benefit, but at the same time there was no proof that it doesn't provide benefit so I took it.
I'd wait until lesion was big enough to get VATS, then, if you wanted it, try to have chemo after that.
One bit of news is that I found it made no difference to my lung capacity after I had my lesion removed.
Kiwi
susie0915 wrote:I had a good response to neoadjuvant therapy, only scar tissue remained. Pet scan before surgery showed no evidence of disease. However, after surgery the pathology report did show minimal residual cancer cells. Even though my margins were clear and no 0/24 lymph nodes, my oncologist recommended chemo as she could not guarantee no cancer cells got into the blood stream. Also, since you were diagnosed hasn't that lung nodule already increased in size (8mm at diagnosis and now 1 cm)?
Not sure if doctors are wanting to wait because you have already had 2 surgeries in last few months, I guess I just don't understand why they wouldn't want to take it out. Like I said, I am not a doctor but I do understand your concern. I hope you can get clarification during your next appointment.
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