Rectal cancer stage IV

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Caat55
Posts: 515
Joined: Sat Dec 23, 2017 6:01 pm

Re: New on the forum

Postby Caat55 » Thu May 24, 2018 10:30 am

Interesting about the lupine, my husband and I wondered about that ashe didnt remember seeing it before.
Take Care.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

Daniellabella
Posts: 41
Joined: Wed May 23, 2018 10:32 pm

Re: New on the forum

Postby Daniellabella » Thu May 24, 2018 4:40 pm

Does anyone here know what a “non-circumferential” Timor means?

My husband’s report mentions he has a 6 cm mass about 10-11 cm from the anal verge.

Is non-circumferential good, bad or neither?

User avatar
Atoq
Posts: 306
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri May 25, 2018 4:03 am

Daniellabella wrote:Does anyone here know what a “non-circumferential” Timor means?

My husband’s report mentions he has a 6 cm mass about 10-11 cm from the anal verge.

Is non-circumferential good, bad or neither?


I am not a doctor, but I think it is a good think that is not growing all around the rectum wall. Circumferential tumors tend to be more advanced, does the report say if it is posterior, anterior or lateral? Staging is anyway the most important predictor of prognosis.

All the best

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

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Atoq
Posts: 306
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri May 25, 2018 4:10 am

Finally I got to talk to the surgeon and my last CAT scan showed no changes, still one solitary metastasis in one lung, 11 mm in diameter (was 10 mm last time). :)

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
Atoq
Posts: 306
Joined: Wed Oct 25, 2017 9:31 am

Re: New on the forum

Postby Atoq » Fri Aug 24, 2018 3:44 am

Just finished with the CAT scan, but I will get the answer in almost three weeks (12th of September). Well in Italy we say «no news, good news». Luckly I am not anxious yet.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

User avatar
Shana
Posts: 399
Joined: Sun Jul 30, 2017 9:45 pm
Location: Sonoma, CA

Re: New on the forum

Postby Shana » Fri Aug 24, 2018 7:39 pm

Atoq wrote:Just finished with the CAT scan, but I will get the answer in almost three weeks (12th of September). Well in Italy we say «no news, good news». Luckly I am not anxious yet.

Claudia


Hope they are good results! I know how hard it can be too wait.

I've had a fair amount of progression and waiting for insurance authorization for SIRT on liver mets... 5 weeks of no chemo and envisioning the tumors having a wild party but I feel fine so I'm trying not to think about it. It's weird but I have less anxiety now because there is a plan in place.

Take care!

Shana
DX - 12/16
MSS - KRAS wild
Well-differentiated adenocarcinoma at splenic flexure
Stage IV CC with liver mets
5FU - Failed twice - 1/17 and 3/17
Irinotecan + Cetuximab: 8/17
CEA 12/17 - 38.7! 1/18 - 33! 2/18-36.5 3/18-39.8 4/18- 54 (ugh) 5/11/18 -78 :( 5/25/18-63!!!!
CT-Scan 5/18 -mixed -some progression and some shrinkage, possibly pseudo
Irinotecan increased to 200mg on 5/7/18 in response to increased CEA and it's working as of 5/25!

User avatar
Atoq
Posts: 306
Joined: Wed Oct 25, 2017 9:31 am

Re: Rectal cancer stage IV

Postby Atoq » Wed Sep 12, 2018 10:35 am

A little update: the CAT scan was clear and CEA is 1.6. I had a rectoscopy today and that was was also ok. Next scan in January 2019. Overall I feel fine, I am running, training strenght and working full time. Still avoiding meat, diary products and sugar as much as I can. Life after reversal is much better than I expected, only mild clustering sometimes and I can eat everything.

Claudia
45 year old, mother of 2
Dx rectal cancer October 2017
At least T3N2aMX (suspect metastasis to one lung 8 mm)
Lynch negative
CEA 1.8
Neoadjuvant chemoradiotherapy Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle biopsy of lung, updated to stage IV
07.05.18 CAT scan, lung metastasis 11 mm
04.06.18 ileostomy reversal
26.06.18 wedge VATS surgery
24.08.18 CAT scan, clear
12.09.18 scope, ok. CEA 1.6

NHMike
Posts: 1700
Joined: Fri Jul 21, 2017 3:43 am

Re: Rectal cancer stage IV

Postby NHMike » Wed Sep 12, 2018 10:50 am

Atoq wrote:A little update: the CAT scan was clear and CEA is 1.6. I had a rectoscopy today and that was was also ok. Next scan in January 2019. Overall I feel fine, I am running, training strenght and working full time. Still avoiding meat, diary products and sugar as much as I can. Life after reversal is much better than I expected, only mild clustering sometimes and I can eat everything.

Claudia


That's a great report.

Clear across the board.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 9/8: 1.8; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal

Caat55
Posts: 515
Joined: Sat Dec 23, 2017 6:01 pm

Re: Rectal cancer stage IV

Postby Caat55 » Wed Sep 12, 2018 7:32 pm

That's great Claudia!!!! Keep on going!!!!

Susan
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds

heiders33
Posts: 277
Joined: Sat Nov 04, 2017 11:08 am

Re: Rectal cancer stage IV

Postby heiders33 » Wed Sep 12, 2018 7:51 pm

Congrats! I can’t wait to get there one day!
36 year-old female
May 2017: Dx rectal cancer at T3N2M0
MSS, KRAS
June-July 2017: 28 days of chemo/radiation
September 2017: laparoscopic LAR surgery with loop ileostomy
October 2017 - February 2018: XELOX six rounds
March 2018: reversal
April 2018: CEA 2.1, all blood counts normal
May 2018: CT scan showed liver spot
August 2018: Abnormal PET, CEA 2.4
September 2018: liver resection with HAI pump


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