Diagnosed stage 4 cc from CT

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stu
Posts: 1612
Joined: Sat Aug 17, 2013 5:46 pm

Re: Diagnosed stage 4 cc from CT

Postby stu » Tue Oct 31, 2017 4:12 am

Hi Adam ,
I am not too far away from you . I am just across the water in Scotland and your not too far away from Christie’s Hospital too .
Couple of things you might want to get better informed about . The size and location of your spread in the liver . The liver surgeons are going in much more aggressively in the UK where possible than they did in the past . As you will see from my mum ‘s signature she had 73% of her liver removed . She had an extensive spread . We have a centre of clinical excellence for the liver in Edinburgh. The surgeons are set up to do the more extensive resections . All they need to do is review your scans . They can be sent to them . You are entitled to a second opinion. This was a game changer for my mum .
Post op is also excellent as they have an entire high dependency unit set up just for liver resections . We travelled from a different city to access it .
Despite an extensive spread my mum had segments 1 to 3 still clear . She had chemo first to get better margins because unlike other organs apparently you get away with less of a margin in the liver .
You really might want to consider consulting with a specialist liver unit to see if there is any options for you there .
Please get in touch with me if you require more information .
My mum was right side ascending . She has no bag to manage and her liver has remained clear for six years .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

jsw7302013
Posts: 10
Joined: Sun Dec 07, 2014 3:14 pm

Re: Diagnosed stage 4 cc from CT

Postby jsw7302013 » Tue Nov 21, 2017 8:56 pm

So sorry for your diagnosis Adam. If you put "signet" in search it will take you to threads with that component. HIPEC may be a possibility. Dr. Jason Foster is another excellent surgeon at University of Nebraska.
60 year old female
Dx: signet ring cell tumor in cecum, stage IIb,
no lymph involvement, Lynch negative
no perineural invasion, microsatellite instabilitiy
right hemicolectomy with resection 8/13
no follow up treatment

risto
Posts: 54
Joined: Wed Jan 06, 2016 2:28 am
Location: USA

Re: Diagnosed stage 4 cc from CT

Postby risto » Wed Nov 22, 2017 9:47 pm

Tumors in both sides of the liver does not automatically preclude liver resection. There are many options for such patients including 2 stage resections. Find a good surgeon who can devise an effective plan for you. My DW had heard "no" from the surgeon in her community medical center, then went to a major university medical center and it was taken care of by one of the best surgeons in the region. You don't have to take "no" for an answer.
DW Dx 7/15, 41 yo, st IV, 3+ liver mets: 11.3 cm, 7cm, 3cm. MSS.
KRAS, APC, SMAD4, TP53 mut.
7/15-10/15: FOLFOX+bev. x8
11/15-12/15: SIRT (Y90)
1/16: Toxic Hepatitis, chemo break
4/16: Liver resec. fail
5/16-7/16: FOLFIRI x6
8/16: Liver resec.
8/16-11/16: FOLFIRI x6
2/17: IMRT/Xeloda x25
4/17: LAR
6/17: CT: Progression. Peri, Lung, Liver mets. FOLFIRI x6
9/17: FOLFIRI+Bev x5.
11/17: CT: Stable. 5FU+bev. maintenance x5
1/18-2/18: Surgery for SBO
5/18: ascites, acute liver injury

rp1954
Posts: 1849
Joined: Mon Jun 13, 2011 1:13 am

First aid

Postby rp1954 » Wed Nov 22, 2017 10:23 pm

This is what we did immediately for what turned out stage 4b colon cancer. We seem to have provoked some good immune responses in the days and weeks following dx that made an initial surgery successful as well as a second surgery on an "inoperable" para aortic cluster carried 13 months.

We used Life Extension's articles to immediately start "first aid for CRC" and gain important opportunities that conventional medicine hasn't recognized yet, within the first days and weeks. This worked well for us, despite confused information, delays, and some drs that gave up too soon or were too circumspect.

Our CRC first aid plan:
1. Cimetidine and high potency immune supplements, with some extras beyond LEF to immediately launch an immune attack, reduce surgical mets and complications, and remove gross deficiencies e.g. vitamin D.
2. Extra bloodwork. You can't measure, plan, treat or talk about what you can't see. I wheedled the first improvement out of the surgeon but just ordered and paid cash for extra blood tests, most of the time after that.

"Investment in/of a lifetime"
In the US and some countries, these (1 & 2) are actually something you can get yourself, today. I concur about HAI too.
watchful, active researcher and caregiver for stage IVb/c CC. surgeries 4/10 sigmoid etc & 5/11 para-aortic LN cluster; 8 yrs immuno-Chemo for mCRC; now no chemo
most of 2010 Life Extension recommendations and possibilities + more, some (much) higher, peaking ~2011-12, taper chemo to almost nothing mid 2018, IV C-->2021. Now supplements


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