Family history

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Dom1991
Posts: 7
Joined: Sun Sep 03, 2017 5:18 am

Family history

Postby Dom1991 » Wed Oct 18, 2017 4:42 pm

Hey guys,

My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think there's any problems.

Thanks

veckon
Posts: 131
Joined: Thu Jul 27, 2017 7:44 am

Re: Family history

Postby veckon » Wed Oct 18, 2017 5:14 pm

Dom1991 wrote:Hey guys,

My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think there's any problems.

Thanks


Get tested for Lynch Syndrome. Going to try and go to bed now, if you have more questions send me a PM.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Family history

Postby Lee » Wed Oct 18, 2017 5:21 pm

Dom1991 wrote:Hey guys, . . . I am 23. GPs don't seem to think there's any problems.
Thanks


Find a new GP. With your family history and your brother being recently diagnosed, all siblings should be check. Get check NOW. With colon cancer, you want to find it when it is a polyp and easy to remove.

Or does the GP know about your brother's recent diagnoses?

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Family history

Postby Aqx99 » Wed Oct 18, 2017 5:47 pm

I agree with Lee, get checked now. The rule of thumb is for family members to get checked when they are 10 years younger than the age at diagnosis.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

crazylife
Posts: 256
Joined: Wed Dec 30, 2015 11:29 am

Re: Family history

Postby crazylife » Wed Oct 18, 2017 6:27 pm

Tell your GP to stick it! Get checked ASAP and often.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)
Right lung surgery, November 2017
Left lung surgery, January 2018
NED - May 2018

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Family history

Postby NHMike » Wed Oct 18, 2017 6:35 pm

If not already done, someone in the family (you if noone else is willing) should get genetic testing for Lynch.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Family history

Postby susie0915 » Wed Oct 18, 2017 7:13 pm

My Drs all said my kids should start testing at 35. I was tested for lynch and it was negative. But they still recommended 35
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: Family history

Postby NedPlease » Wed Oct 18, 2017 7:40 pm

Both of my kids were scoped at age 30 without any pushback from GI docs.

I sleep better now.

N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Family history

Postby DarknessEmbraced » Thu Oct 19, 2017 6:10 pm

I would get checked due to your family history.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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