Family history

Please feel free to read, share your thoughts, your stories and connect with others!
Dom1991
Posts: 7
Joined: Sun Sep 03, 2017 5:18 am

Family history

Postby Dom1991 » Wed Oct 18, 2017 4:42 pm

Hey guys,

My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think there's any problems.

Thanks

veckon
Posts: 104
Joined: Thu Jul 27, 2017 7:44 am

Re: Family history

Postby veckon » Wed Oct 18, 2017 5:14 pm

Dom1991 wrote:Hey guys,

My brother recently underwent surgery for bowel cancer in his late twenties, and I've just found out that my grandma also had bowel cancer in her late 20s. Since two relatives have had bowel cancer so young, what age would I be wanting to start screening? I am 23. GPs don't seem to think there's any problems.

Thanks


Get tested for Lynch Syndrome. Going to try and go to bed now, if you have more questions send me a PM.
27 yo male
Metastatic rectal cancer diagnosed 12/16
Liver metastases and peritoneal carcinomatosis
Lynch syndrome, MSI-H
Failed liver resection 3/17
FOLFOX6 12/16 - 05/17
Keytruda 5/17 - present
@Memorial Sloan Kettering

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: Family history

Postby Lee » Wed Oct 18, 2017 5:21 pm

Dom1991 wrote:Hey guys, . . . I am 23. GPs don't seem to think there's any problems.
Thanks


Find a new GP. With your family history and your brother being recently diagnosed, all siblings should be check. Get check NOW. With colon cancer, you want to find it when it is a polyp and easy to remove.

Or does the GP know about your brother's recent diagnoses?

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Aqx99
Posts: 249
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: Family history

Postby Aqx99 » Wed Oct 18, 2017 5:47 pm

I agree with Lee, get checked now. The rule of thumb is for family members to get checked when they are 10 years younger than the age at diagnosis.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

crazylife
Posts: 230
Joined: Wed Dec 30, 2015 11:29 am

Re: Family history

Postby crazylife » Wed Oct 18, 2017 6:27 pm

Tell your GP to stick it! Get checked ASAP and often.
Wife to DH, 41 years old, diagnosed 11/15
Stage 4, Mod diff, 13/24 LN, 1 liver met
Colon/liver resection at MSK, 11/15
8mm lung met (not confirmed) and enlarged lymph nodes 1/16
12 rounds of folfox (9 with Oxi) 6/16
NED - July 2016
NED - October 2016
3 lung mets - March 2017
7 lung mets, May 2017
RFA to largest met, June 2017
Lung mets growing slowly, October 2017 (off treatment since June 2016)

NHMike
Posts: 553
Joined: Fri Jul 21, 2017 3:43 am

Re: Family history

Postby NHMike » Wed Oct 18, 2017 6:35 pm

If not already done, someone in the family (you if noone else is willing) should get genetic testing for Lynch.
06/23/17: ER rectal bleeding; Colonoscopy+Biopsy
07/13/17: Stage 3B rectal cancer. T3, N1b, M0. 5.2 x 4.5 x 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6 mm, 5 x 5 mm.
Xeloda 3,400 mg/day + radiation 07/31 - 09/08.
CEA 2.7; halfway through treatment: 1.9; after treatment: 1.8.
MSS, KRAS G12D
10/06/17: 2.7 x 2.2 x 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 mm (-75%), 5 x 3 mm (-40%). 5.1 CM from AV.
Surgery: 10/30/17 LAR, Temp Ileostomy

User avatar
susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: Family history

Postby susie0915 » Wed Oct 18, 2017 7:13 pm

My Drs all said my kids should start testing at 35. I was tested for lynch and it was negative. But they still recommended 35
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

NedPlease
Posts: 522
Joined: Fri Mar 23, 2012 3:56 pm

Re: Family history

Postby NedPlease » Wed Oct 18, 2017 7:40 pm

Both of my kids were scoped at age 30 without any pushback from GI docs.

I sleep better now.

N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 7/17 Clear Scans
Today- NED

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Family history

Postby DarknessEmbraced » Thu Oct 19, 2017 6:10 pm

I would get checked due to your family history.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: amy168huang, Bing [Bot], dianetavegia, Hopegirl and 38 guests