I am now five years cancer free after my lung recurrence

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Mys
Posts: 163
Joined: Wed Nov 10, 2010 1:06 pm

I am now five years cancer free after my lung recurrence

Postby Mys » Wed Oct 18, 2017 2:35 pm

Hello all,

I joined this forum seven years ago being stage 3C. I had a lung recurrence with a single lung met, and had lung surgery five years ago to remove the met (no follow up chemo).

Today I got the news that my latest CT scan was normal, and I am now five years cancer free. The doctors will stop scanning me now. I will consider this a cure. I was afraid to dream I'd ever get to this point, but now I do believe I will grow old cancer free.

I am updating my story here even if I am no longer active on this board because I know some of you with lung recurrences might find hope in it, as I once did when I read stories of people leaving cancer behind after being stage IV or recurrent.

My best wishes to you all.
CC diagnosed June 2010 (at 34), stage 3C. 10/26 lymph nodes. Simultaneous DCIS breast cancer. Lung met first seen on scan March 2012 (6mm), open lung surgery October 2012 (8mm). Biopsy confirmed metastasis. No chemo after lung surgery. NED.

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susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: I am now five years cancer free after my lung recurrence

Postby susie0915 » Wed Oct 18, 2017 3:26 pm

This is awesome news. I just received news of a clear ct scan today as well. Your story makes me feel positive. Last May a 4mm nodule was seen on my scan, and a 3 month repeat showed no change. I'm hoping it will stay stable in my January scan, but it helps me to know that even if it ends up being something I can still do well. My oncologist believes it has to do with my interstitial lung disease, but my pulmonologist threw out the possibility of a new lung cancer. Ugh. That is why we have to watch as she said cancers can double in size in 3-4 months. Congrats on your five years and many more to come. I love these stories.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

teacher2017
Posts: 121
Joined: Sat Sep 09, 2017 1:18 pm
Facebook Username: lydia Clark

Re: I am now five years cancer free after my lung recurrence

Postby teacher2017 » Wed Oct 18, 2017 3:58 pm

Mys wrote:Hello all,

I joined this forum seven years ago being stage 3C. I had a lung recurrence with a single lung met, and had lung surgery five years ago to remove the met (no follow up chemo).

Today I got the news that my latest CT scan was normal, and I am now five years cancer free. The doctors will stop scanning me now. I will consider this a cure. I was afraid to dream I'd ever get to this point, but now I do believe I will grow old cancer free.

I am updating my story here even if I am no longer active on this board because I know some of you with lung recurrences might find hope in it, as I once did when I read stories of people leaving cancer behind after being stage IV or recurrent.

My best wishes to you all.


Thank you! We needed that! I am stage 3c and haven't stated chemo yet and all I think about is reoccurrence. You give me hope! May you live a long and happy life!
48 year old female- mom of 2 (12,15)
DX stage 3c - 12/17 LN. T3
8" sigmoid resection Sept 22 2017
6.1cm tumor size
chemo -folfox 11/8 started
CEA level- 1.4 11/8
Hoping clean up chemo works!

ams5796
Posts: 2270
Joined: Fri Feb 06, 2009 10:07 am

Re: I am now five years cancer free after my lung recurrence

Postby ams5796 » Wed Oct 18, 2017 4:09 pm

That's great news. Being a lung recurrence member I'm always pleased to see this news. Happy when folks come back on here with success stories.

Happy for you too, Susie. Good news all around!


Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Andrea1976
Posts: 380
Joined: Sun Jan 03, 2016 10:32 am

Re: I am now five years cancer free after my lung recurrence

Postby Andrea1976 » Wed Oct 18, 2017 4:36 pm

Congratulations!!! So happy. I see that you were also double lucky:-( I was also diagnosed stage 0 Melanoma. Maybe my cancer polyp save my life:-)
Stage I
pedunculate polyp in descending colon
moderately diff adenocarcinoma 0.6 cm
Tumor confined to the head of the polyp
Stalk margin 2 cm negative for dysplasia and malignancy
Polyp removed during colonoscopy 1/15/16
No lymphovascular involved
No surgery
CEA after polyp removal 0.3
Genetic testing negative for colon and breast cancer
39 year old female. I am not celebrating my 40th but waiting for my big 50 birthday party!!!

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: I am now five years cancer free after my lung recurrence

Postby Lee » Wed Oct 18, 2017 5:50 pm

AWESOME NEWS!

Thanks for the update, may you always reside in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Mercy110
Posts: 71
Joined: Wed Aug 16, 2017 12:13 am

Re: I am now five years cancer free after my lung recurrence

Postby Mercy110 » Wed Oct 18, 2017 5:53 pm

Congrats!! Your experience is rely useful for ppl with lung Mets. My mum has multiple lung nodules which made her harder to hv surgery, but I rely want her to undergo surgery in order to be cancer free.
Daughter of Mum age 56, NRAS-mutate Q61R
2017-05: Surgery done. Temporary stoma. Path: T4N1M0. Stage3C
2017-06: Chemo - Xeloda. Rejected radio. CEA: 7.3
2017-08: CEA: 8.0 (1st) CEA: 9.8 (2nd) CT Scan: Multiple lung nodules. Stage4
2017-09: Chemo - FOLFOX + Avastin, 85% for serious diarrhea CEA: 7.0
CEA: 4.7 (10/10), 3.7 (10/11)

WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: I am now five years cancer free after my lung recurrence

Postby mariane » Wed Oct 18, 2017 9:12 pm

Congratulations!!! I am very happy! Many happy years to come!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I am now five years cancer free after my lung recurrence

Postby DarknessEmbraced » Thu Oct 19, 2017 6:07 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

teri3
Posts: 346
Joined: Fri Jan 09, 2015 11:03 am

Re: I am now five years cancer free after my lung recurrence

Postby teri3 » Fri Oct 20, 2017 7:55 am

Congrats! Five years cancer free is major. I also had lung recurrence after being 3c, I had my mets removed in April via VATS. I hope to join you in another 4 years :).
Teri
58 yrs old female
MSS KRAS mutation G12V
adenocarcinoma sigmoid colon dx 11-14
sigmoidectomy 11-14
Stage 3A
3 out of 20 lymph nodes involved
started FolFox 1-27-15
11 rounds FOLFOX last one 6-30-2015
7-29-2015 PET clear
5-14-2016 CT 2 nodules one in each lung
Confirmed pulmonary metastasis stage 4
FOLFIRi + Avistin started 8-16 11 rounds complete 12-16
CT 12-16 nodules shrunk chemo break wait and see :?

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CRguy
Posts: 9286
Joined: Sun Feb 10, 2008 6:00 pm

Re: I am now five years cancer free after my lung recurrence

Postby CRguy » Fri Oct 20, 2017 9:23 pm

Congrats Mys

Keep racking up those milestones on the path to a permanent home in ... NedsVille !!!!
Cheers
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

behconsult
Posts: 219
Joined: Fri Jul 04, 2014 4:53 pm

Re: I am now five years cancer free after my lung recurrence

Postby behconsult » Sun Oct 22, 2017 3:04 pm

Yes!!!! That is what I love to hear. Thank you so much for sharing. I am on my 32 round of chemo give or take for lung mets. I would write more but and going out and bang a 20 mile bike ride. Blessings and Gratefulness. Bob
Stage 3B Age 52
T4; 2/16; spot on perit
Resctn 6/9/2014
Folfox strt 7/2014. 6 of 12 tx
Chemo induced DM2
Pet 4 mets to lung (1 cm, 6 mm) Xeloda/Avastin 9/16 to present.
Cryo-ablation to three spots- Collapsed lung/chest tube 5/17. One more spot to go.

fumaros
Posts: 214
Joined: Sat Jul 02, 2016 10:26 pm
Location: Syracuse, NY
Contact:

Re: I am now five years cancer free after my lung recurrence

Postby fumaros » Wed Oct 25, 2017 10:27 am

Thanks Mys, these mile stones mean a lot to us as well. enjoy a long and beautiful life.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6, 7/17 - 0.5, 10/17 - 0.9
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 10/17 - NED

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dianetavegia
Posts: 2633
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: I am now five years cancer free after my lung recurrence

Postby dianetavegia » Fri Nov 03, 2017 12:26 pm

I was 5 year post liver resection for a 1.4 cm solitary met this past April, (8 years post Stage III) and my doctor offered to stop scans. I couldn't do it! We've gone to CEA at 6 months, scans and CEA at 1 year. He said he can keep doing it for 10 years from the liver met if I insist.

I've seen a number of RECTAL patients who had very late mets, but almost no late mets with liver only. I am just a huge coward, I think. I'm 67 in December and know I won't be healthy forever and ever, but just so afraid something will appear and it'll be missed if I stop scans completely.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 11 months since original dx. Five yrs. 7 months post liver resection. NED November 2017!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2


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