My small "cancer's death" anniversary

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mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

My small "cancer's death" anniversary

Postby mariane » Tue Oct 17, 2017 8:35 pm

2 years ago my MSKCC oncologist came to me with my pathology report and told me that my cancer was dead (I had 10+ liver tumors). My CEA went down below 2 in October 2015 from 140 in mid August that year at the beginning of chemotherapy.
I achieved NED in May 2016 and yesterday I got another clear scan. My CEA yesterday was 1.1 at MSKCC. My liver tests went completely back to norm ( most of them low norm). My recent LDH is 140.
I can fully live my life. I travel, hike, jog, do pilates, play tennis and other sports with my energetic kids. A year ago I came back to college and I am still surprised that I can learn something after so much chemo. I enjoy gardening and coffee with my friends. I see how my kids grow.
I want to write that it is worth to do treatment. I outlived my 2 expiration dates. My first oncologists and radiologist denied I could ever get to NED. I am clear.
There is hope!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: My small "cancer's death" anniversary

Postby Lee » Tue Oct 17, 2017 9:23 pm

That is no "small" anniversary, that in my books is a "Big Fu**ing Deal".

CONGRATULATIONS :D May you ALWAYS reside in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Joannerogers
Posts: 249
Joined: Tue Jun 16, 2015 4:50 pm

Re: My small "cancer's death" anniversary

Postby Joannerogers » Tue Oct 17, 2017 9:43 pm

Marvelous! Such good news!
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

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HopeForJesse
Posts: 226
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: My small "cancer's death" anniversary

Postby HopeForJesse » Tue Oct 17, 2017 10:02 pm

Hi Mariane!

So thrilled for you to hear this. Amen. Thanks for sharing the hope to others still in the midst of treatment. :D
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS, mod dif adenocarcinoma, high grade dysplasia, TP53 APC,BRCA2
12/15 CEA 241, 4/16 CEA 22.3 >6 FOLFOX 7/16 CEA 4.3 11/17 1.8 3/18 132 9/17 4.2
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections/ablations 7/16
FUDR 8/16 FOLFOX resume 8/24 reaction 12/16 No more chemo :D
Rising CEA 3/17 Xeloda, 5/17 Erbitux & Iri 9/17 stable but lung and lymph mets
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

AbbyDoo
Posts: 134
Joined: Wed Jun 29, 2016 2:25 am
Location: So.Ca.

Re: My small "cancer's death" anniversary

Postby AbbyDoo » Wed Oct 18, 2017 1:04 am

Small I think not.
I think it's a big deal. Stage 4 to NED is just assume
Congratulations
53 yrs old
4/30/15 colonoscopy Mass found
5/21/15 staged 3 C rectal cancer
7/3/15 finished xeloda and radiation 28 rounds
9/30/15 LAR
10/29/15 picc line installed
11/2/15 start chemo 5 fu Oxaliplatin
3/7/16 Finish Chemo
4/29/16 Ileostomy Reversal.
7/13/16 colonoscopy clear.
CRC survivors know there Sh%t

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susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: My small "cancer's death" anniversary

Postby susie0915 » Wed Oct 18, 2017 6:29 am

Congratulations, so happy for you awesome news.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

stu
Posts: 603
Joined: Sat Aug 17, 2013 5:46 pm

Re: My small "cancer's death" anniversary

Postby stu » Wed Oct 18, 2017 7:36 am

Just lovely to read . Keep enjoying all the good times .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared

SweetC80
Posts: 62
Joined: Fri Sep 01, 2017 1:28 pm

Re: My small "cancer's death" anniversary

Postby SweetC80 » Wed Oct 18, 2017 10:31 am

WooHoo!!! Such wonderful news!!
My Mom's history
68 years old at diagnoses
12/16 Stage IIIb Rectal Cancer CEA 1.2
1/17-2/17 Chemoradiation CEA 4.4
5/17 Entire Colon (9 non resectable pre cancerous polyps), Rectum and Anus removal Perm Ileostomy Bag
7/17 Starts FOLFOX
9/17 Stage IV 9cm Liver Met plus abdominal Lymph Nods and suspicious Lung Nodule CEA 197
9/17 Starts Irincotecan CEA 160
10/17 Confirmed KRAS Positive CEA 210
11/17 CEA 425 waiting on scan

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: My small "cancer's death" anniversary

Postby mariane » Wed Oct 18, 2017 9:25 pm

Lee wrote:That is no "small" anniversary, that in my books is a "Big Fu**ing Deal".

CONGRATULATIONS :D May you ALWAYS reside in NEDville.

Lee

Thank you very much, Lee! I am grateful for even these good days I have been given until now. I hope for more :)
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: My small "cancer's death" anniversary

Postby mariane » Wed Oct 18, 2017 9:26 pm

Joannerogers wrote:Marvelous! Such good news!


Thank you, my surgery buddy!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: My small "cancer's death" anniversary

Postby mariane » Wed Oct 18, 2017 9:38 pm

HopeForJesse wrote:Hi Mariane!

So thrilled for you to hear this. Amen. Thanks for sharing the hope to others still in the midst of treatment. :D


Thank you, Mary!

I pray for Jesse every day since we had surgery during the same time. I think about you guys a lot. I hope we could meet one day again. I will have next scan round in mid January.

There are always so many people at MSKCC. On Sunday in radiology office among others I met an older Dr. K patient . He was 13 years under her care. After 82 chemo treatments and recurrences he has been NED and off chemo for over 10 years. Overall he was in a very good condition and very, very positive. He was a messenger of hope to us all sitting there. Some were still on chemo, some freshly out, different steps on the journey. Dr. K infected us all with her energy and battle spirit.
I also met Katja- the radiology nurse who remembered me. I cried in her arms during my first scan. She is our great cheerleader.

All the best for you and Jesse,
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: My small "cancer's death" anniversary

Postby mariane » Wed Oct 18, 2017 9:38 pm

AbbyDoo wrote:Small I think not.
I think it's a big deal. Stage 4 to NED is just assume
Congratulations


Thank you, AbbyDoo!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

mariane
Posts: 574
Joined: Sun Sep 13, 2015 6:16 pm

Re: My small "cancer's death" anniversary

Postby mariane » Wed Oct 18, 2017 9:39 pm

susie0915 wrote:Congratulations, so happy for you awesome news.


Thank you, Susie0915!
mom of 8 years old twins, dx @ 40 with upper rectal cancer, 10+ liver mets in 6/2015, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

DarknessEmbraced
Posts: 2832
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: My small "cancer's death" anniversary

Postby DarknessEmbraced » Thu Oct 19, 2017 6:06 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

User avatar
HopeForJesse
Posts: 226
Joined: Wed Feb 24, 2016 9:39 am
Location: Philadelphia

Re: My small "cancer's death" anniversary

Postby HopeForJesse » Thu Oct 19, 2017 9:36 pm

mariane wrote:
HopeForJesse wrote:Hi Mariane!

So thrilled for you to hear this. Amen. Thanks for sharing the hope to others still in the midst of treatment. :D


Thank you, Mary!

I pray for Jesse every day since we had surgery during the same time. I think about you guys a lot. I hope we could meet one day again. I will have next scan round in mid January.

There are always so many people at MSKCC. On Sunday in radiology office among others I met an older Dr. K patient . He was 13 years under her care. After 82 chemo treatments and recurrences he has been NED and off chemo for over 10 years. Overall he was in a very good condition and very, very positive. He was a messenger of hope to us all sitting there. Some were still on chemo, some freshly out, different steps on the journey. Dr. K infected us all with her energy and battle spirit.
I also met Katja- the radiology nurse who remembered me. I cried in her arms during my first scan. She is our great cheerleader.

All the best for you and Jesse,


Thanks as always for the prayers. Very much appreciated. My prayer list grows every time we are at MSK and you remain on it of course. We will be there again 11/8 for next scans, but I will check with you once we have January dates. We too meet so many wonderful people each time. One long term guy gave Jesse an eye of the tiger marble as a reminder for strength and hope. :D

We travelled to Germany to see our son recently and have an Aruba tripped planned for December so making sure to have things to look forward to to balance the bad fatigue weeks.

Keep in touch and congrats again!
DH DX 01/16 49 YO inop RC stage IV liver mets
MSS, mod dif adenocarcinoma, high grade dysplasia, TP53 APC,BRCA2
12/15 CEA 241, 4/16 CEA 22.3 >6 FOLFOX 7/16 CEA 4.3 11/17 1.8 3/18 132 9/17 4.2
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections/ablations 7/16
FUDR 8/16 FOLFOX resume 8/24 reaction 12/16 No more chemo :D
Rising CEA 3/17 Xeloda, 5/17 Erbitux & Iri 9/17 stable but lung and lymph mets
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!


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