First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

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MKC70
Posts: 7
Joined: Sat May 20, 2017 8:39 pm

First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby MKC70 » Sun Oct 15, 2017 11:26 am

Hi there! My first chemo is tomorrow and now my ride has completely fallen through. I am not scared or worried about going by myself at all. I am fine doing it on my own this time. Medically speaking. Will I be OK driving back from the appt? I am having the Oxaliplatin/Leukovorin 2hr/5FU Infuser and they will give me a pump to have at home for 2 days. Thanks

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susie0915
Posts: 441
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby susie0915 » Sun Oct 15, 2017 11:45 am

I was always okay to drive there and home. My daughter always came with me, but I drove and I would've been okay without her. I had a 2 hr
Oxi infusion.
58 yr old mother of 3 Dx @ 55
5/15 DX T3N0MO/ 2A
6/15 5 wks of chemo/rad
7/15 sigmoidoscopy/scar tissue left
8/15 Pet scan NED
9/15 LAR
0/24 nodes
10/15 Bowel blockage. 3 1/2 weeks in hospital,early ileo rev since
surgery to repair blockage. c-diff inf :(
12/15 6 rds of xelox
5/16 Clear CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 CT 4mm lung nod onc thinks scar tissue
monitored for autoimmune disorder/interstitial lung disease
7/17 no change lung nodule
10/17 Clear CT

Robino1
Posts: 180
Joined: Fri Aug 11, 2017 12:09 pm
Facebook Username: Robin.lawthers
Location: Florida

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Robino1 » Sun Oct 15, 2017 12:52 pm

I have driven myself to and from since June. I go by myself since hubby has to continue working. Gotta keep that insurance! ;)

I'm on the same treatment as you but also get Avastin. Take snacks as you'll be there for a while. I take back roads going home and just take my time. :)
At 54 2014 1st colonoscopy colon cancer detected.
Colon resect right ascending
margins clear. No chemo req
2017
Distended abd, pain in intestines.
CT scan shows seeding
Ascites causing the distention.
Lap diag - cancer on the omentum
CEA 217
CEA 219
PET cancer on the omentum, susp activ right abdomen
FOLFOX started 6/17
CEA 202
Not genetic
8/29/17 CT scan showed excellent melting of the tumor. Chemo is working!
Ascites is gone
CEA: 9/30/17 -109; 10/12/17 - 99.1; 11/4/17 - 90.7

Aqx99
Posts: 249
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Aqx99 » Sun Oct 15, 2017 3:20 pm

I get a sort of vertigo feeling after my oxaliplatin infusion. I don't trust myself to drive, so my neighbor drops me off and picks me up.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
Diagnosed at age 39
2/21/17 Diagnosis
2/21/17 CEA 0.9 ng/mL
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR with temp loop ileostomy, ovaries and fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 Started CapeOx, 6 Cycles
7/24/17 Diagnosed with precursor ovarian cancer
9/6/17 CA 125 11.1 U/mL
1/18ish Reversal

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Lee » Sun Oct 15, 2017 4:01 pm

I always drove myself to chemo. Butt it was only about 15 mins away. How far of a drive do you have? If there are problems, take the taxi home.

Some pointer, make sure to drink LOTS of water today, you will lose it in the next few days. You do not want to get dehydrated I always got a breakfast egg and cheese sandwich on way to chemo. At least I got some carbs and protein in me.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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CRguy
Posts: 9287
Joined: Sun Feb 10, 2008 6:00 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby CRguy » Sun Oct 15, 2017 4:32 pm

MKC70 wrote:Hi there! My first chemo is tomorrow and now my ride has completely fallen through. I am not scared or worried about going by myself at all. I am fine doing it on my own this time. Medically speaking. Will I be OK driving back from the appt? I am having the Oxaliplatin/Leukovorin 2hr/5FU Infuser and they will give me a pump to have at home for 2 days. Thanks

Just so you know... it will be a personal thing for you.
Some folks have reactions which would make it questionable to be driving ....
others have no immediate reactions and are fine.

My wife came with me for the first couple of infusions as she wanted to be there for support
BUTT I actually did all the driving for 12 FOLFOX cycles myself
( had my powerport on the upper right chest so I could use seat belts over my left shoulder without issues :shock: when I was the driver )

See how you feel during and after the infusion
Don't be a hero... this IS a major procedure and your body needs to accept it and adjust

If you feel like shit = take a taxi or call a friend or investigate the patient "assist" services which should be available through the infusion/cancer center.

This IS a marathon not a sprint
One step at at time my friend
ONE step at a time
let us know how it goes for you

Cheers and Harmony
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

zephyr
Posts: 40
Joined: Thu Aug 18, 2016 7:31 am

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby zephyr » Sun Oct 15, 2017 6:29 pm

CRguy wrote:This IS a marathon not a sprint
One step at at time my friend
ONE step at a time

Please excuse the off-topic post but I just wanted to say thanks, CRguy. That was just the reminder I needed today.
Oct-09 Stage I CC
Jun-16 Stage III (T3 N1c)
Jun-16 Surgery
Jul-16 Probable Stage IV with inoperable lung mets
Aug-16 FOLFOX
Jan-17 Dropped Oxi, continuing with 5FU & Avastin
Aug-17 Dropped Avastin, continuing with 5FU

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CRguy
Posts: 9287
Joined: Sun Feb 10, 2008 6:00 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby CRguy » Sun Oct 15, 2017 7:26 pm

Most welcome my friend.

AND I think maybe not so O/T, as MKC70 is heading to first infusion and with a million things going thru the mind
WE all know at some point ... WE just need to take one step at a time and keep moving forward.

The other quote which also resonates :
" a journey of a thousand miles begins with a single step " - Lao Tzu from Tao Te Ching

AND one from yours truly :mrgreen:
" There are NO destinations ... ONLY Journeys."
and many of OURS ... extend beyond a thousand miles

Harmony to all my friends here
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Noon32316
Posts: 34
Joined: Sun May 08, 2016 11:33 am

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Noon32316 » Sun Oct 15, 2017 11:21 pm

I just wanted to say good luck and hope all goes well with your first chemo.
3/16: Dx colon cancer (sigmoid). Age: 36
4/16: PET/CT, Sigmoidectomy, Port installed
5/23/16 to 11/30/16: Folfox - 12 tx, no oxaliplatin for #11 & #12
11/5/16: PET/CT - NED
3/21/17: Colonoscopy = clear
9/27/17: CT scan = pathologically enlarged retroperitoneal lymph nodes - nodal metastases
10/5/17: CT guided needle biopsy
10/13/17: Confirmed - Recurrence

CEA '16 & '17: < 0.5
Original Dx: Stage 3C, T4a, N2b, Grade 3, 16/16 lymph nodes, infiltrating signet-ring cell carcinoma
Lynch negative

TXLiz
Posts: 228
Joined: Thu Sep 22, 2016 3:31 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby TXLiz » Mon Oct 16, 2017 10:52 am

First of all, good luck!!

I drove myself there and back to each chemo. I was by myself for the last 6 or so treatments.

My only issue was the steroids they gave with the chemo would make my blood sugar wonky. If I didn't eat after chemo I felt worse. But I didn't feel hungry...just nauseous and headachey and sick from not eating. So I'd eat something in my car before I drove home.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Lee » Mon Oct 16, 2017 7:58 pm

So how did it go, how ya doing?

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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