First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

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MKC70
Posts: 25
Joined: Sat May 20, 2017 8:39 pm

First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby MKC70 » Sun Oct 15, 2017 11:26 am

Hi there! My first chemo is tomorrow and now my ride has completely fallen through. I am not scared or worried about going by myself at all. I am fine doing it on my own this time. Medically speaking. Will I be OK driving back from the appt? I am having the Oxaliplatin/Leukovorin 2hr/5FU Infuser and they will give me a pump to have at home for 2 days. Thanks

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susie0915
Posts: 945
Joined: Wed Aug 02, 2017 8:17 am
Facebook Username: Susan DeGrazia Hostetter
Location: Michigan

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby susie0915 » Sun Oct 15, 2017 11:45 am

I was always okay to drive there and home. My daughter always came with me, but I drove and I would've been okay without her. I had a 2 hr
Oxi infusion.
58 yrs old Dx @ 55
5/15 DX T3N0MO
6/15 5 wks chemo/rad
7/15 sigmoidoscopy/only scar tissue left
8/15 PET scan NED
9/15 LAR
0/24 nodes
10/15 blockage. surgery,early ileo rev, c-diff inf :(
12/15 6 rds of xelox
5/16 CT lung scarring/inflammation
9/16 clear colonoscopy
4/17 C 4mm lung nod
10/17 pel/abd CT NED
11/17 CEA<.5
1/18 CT/Lung no change in 4mm nodule
5/18 CEA<.5, CT pel/abd/lung NED
11/18 CEA .6
5/19 CT NED, CEA <.5
10/19 Clear colonscopy
11/19 CEA <.5

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Robino1
Posts: 463
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Facebook Username: Robin.lawthers
Location: Florida

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Robino1 » Sun Oct 15, 2017 12:52 pm

I have driven myself to and from since June. I go by myself since hubby has to continue working. Gotta keep that insurance! ;)

I'm on the same treatment as you but also get Avastin. Take snacks as you'll be there for a while. I take back roads going home and just take my time. :)
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
2017
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5; 107; 119
BRAF V600e

Aqx99
Posts: 403
Joined: Fri Mar 31, 2017 7:28 am
Facebook Username: aqx99
Location: Pfafftown, NC

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Aqx99 » Sun Oct 15, 2017 3:20 pm

I get a sort of vertigo feeling after my oxaliplatin infusion. I don't trust myself to drive, so my neighbor drops me off and picks me up.
Anne, 40
Stage IIIB Rectal Cancer
T3N1bM0
2/21/17 Dx, Age 39
2/21/17 CEA 0.9
3/23/17 - 5/2/17 Chemoradiation, 28 treatments
6/14/17 Robotic LAR w/temp loop ileostomy, ovaries & fallopian tubes removed, 2/21 lymph nodes positive
7/24/17 - 12/18/17 CapeOx, 6 Cycles
7/24/17 Dx w/ovarian cancer
9/6/17 CA 125 11.1
11/27/17 CEA 2.6
12/5/17 CT NED
12/13/17 CEA 2.9
1/11/18 CA 125 8.6
1/23/18 Reversal
3/21/18 CT enlarged thymus
4/6/18 PET NED
7/10/18 CT NED
7/11/18 CEA 2.6
9/18 Bilateral Prophylactic Mastectomy

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Lee » Sun Oct 15, 2017 4:01 pm

I always drove myself to chemo. Butt it was only about 15 mins away. How far of a drive do you have? If there are problems, take the taxi home.

Some pointer, make sure to drink LOTS of water today, you will lose it in the next few days. You do not want to get dehydrated I always got a breakfast egg and cheese sandwich on way to chemo. At least I got some carbs and protein in me.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby CRguy » Sun Oct 15, 2017 4:32 pm

MKC70 wrote:Hi there! My first chemo is tomorrow and now my ride has completely fallen through. I am not scared or worried about going by myself at all. I am fine doing it on my own this time. Medically speaking. Will I be OK driving back from the appt? I am having the Oxaliplatin/Leukovorin 2hr/5FU Infuser and they will give me a pump to have at home for 2 days. Thanks

Just so you know... it will be a personal thing for you.
Some folks have reactions which would make it questionable to be driving ....
others have no immediate reactions and are fine.

My wife came with me for the first couple of infusions as she wanted to be there for support
BUTT I actually did all the driving for 12 FOLFOX cycles myself
( had my powerport on the upper right chest so I could use seat belts over my left shoulder without issues :shock: when I was the driver )

See how you feel during and after the infusion
Don't be a hero... this IS a major procedure and your body needs to accept it and adjust

If you feel like shit = take a taxi or call a friend or investigate the patient "assist" services which should be available through the infusion/cancer center.

This IS a marathon not a sprint
One step at at time my friend
ONE step at a time
let us know how it goes for you

Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

zephyr
Posts: 363
Joined: Thu Aug 18, 2016 7:31 am

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby zephyr » Sun Oct 15, 2017 6:29 pm

CRguy wrote:This IS a marathon not a sprint
One step at at time my friend
ONE step at a time

Please excuse the off-topic post but I just wanted to say thanks, CRguy. That was just the reminder I needed today.
Nov-2009 Early stage CRC, routine colonoscopy
2010-2014 F/U colonoscopies, all clear
Jun-2016 CRC during F/U colonoscopy, surgery, Stage 4, KRAS, MSS
Aug-2016-May-2018 Folfox, 5FU, Folfiri & Avastin
Aug/Sep-2018 YAG laser surgeries (Germany), 11 nodules removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 Dec-2020 Xeloda/Avastin, SBRT, cont. Xeloda/Avastin
Mar-2021 Forfiri/Avastin
Mar-2022 Ablation & Thoracotomy
Feb-2023 Folfiri & Avastin
Nov-2023 Xeloda & Avastin

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby CRguy » Sun Oct 15, 2017 7:26 pm

Most welcome my friend.

AND I think maybe not so O/T, as MKC70 is heading to first infusion and with a million things going thru the mind
WE all know at some point ... WE just need to take one step at a time and keep moving forward.

The other quote which also resonates :
" a journey of a thousand miles begins with a single step " - Lao Tzu from Tao Te Ching

AND one from yours truly :mrgreen:
" There are NO destinations ... ONLY Journeys."
and many of OURS ... extend beyond a thousand miles

Harmony to all my friends here
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Noon32316
Posts: 34
Joined: Sun May 08, 2016 11:33 am

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Noon32316 » Sun Oct 15, 2017 11:21 pm

I just wanted to say good luck and hope all goes well with your first chemo.
3/16: Dx colon cancer (sigmoid). Age: 36
4/16: PET/CT, Sigmoidectomy, Port installed
5/23/16 to 11/30/16: Folfox - 12 tx, no oxaliplatin for #11 & #12
11/5/16: PET/CT - NED
3/21/17: Colonoscopy = clear
9/27/17: CT scan = pathologically enlarged retroperitoneal lymph nodes - nodal metastases
10/5/17: CT guided needle biopsy
10/13/17: Confirmed - Recurrence

CEA '16 & '17: < 0.5
Original Dx: Stage 3C, T4a, N2b, Grade 3, 16/16 lymph nodes, infiltrating signet-ring cell carcinoma
Lynch negative

TXLiz
Posts: 249
Joined: Thu Sep 22, 2016 3:31 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby TXLiz » Mon Oct 16, 2017 10:52 am

First of all, good luck!!

I drove myself there and back to each chemo. I was by myself for the last 6 or so treatments.

My only issue was the steroids they gave with the chemo would make my blood sugar wonky. If I didn't eat after chemo I felt worse. But I didn't feel hungry...just nauseous and headachey and sick from not eating. So I'd eat something in my car before I drove home.
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
MSI-high
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"
Colonoscopy 10/5/2017 clear

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: First Chemo (Oxaliplatin/Leukovorin 2hr/5FU Infuser)

Postby Lee » Mon Oct 16, 2017 7:58 pm

So how did it go, how ya doing?

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!


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