At the risk of sounding like a Nike ad, JUST DO IT! DH and I are back from a week in Florida which included a day at Disney Springs, a day a Universal City Walk, and a day at Kennedy Space Center. Two hours via plane each way, driving around, staying in a hotel, eating out, shopping: all handled with planning and afternoon naps. We took extra stoma supplies, phone numbers, and over-the-counter medications. We stocked up on bottled water. We took breaks often.
Thinking about NYC for Christmas. I have even called our travel agent and placed a deposit for a cruise in April (with really good travel insurance). Then we will head to 2 college graduations in May. Travel has always been one of the greatest pleasures for us and by golly cancer is not taking it away!
So if you are worried about travel/whatever with a stoma or while on chemo, talk to your doctor, and then JUST DO IT. What is YOUR greatest pleasure? JUST DO IT!
Caregiver to DH, dx age 50, mets to liver/lungs, MSS, quad wild
10/16: left hemicolectomy w/perm. colostomy, CEA 114
11/16: port in, FOLFOX + Avastin; CEA down to 11 by 4/17
6/17: CEA 15, OX discontinued for now due to neuropathy
11/17: CEA 38, changed to CAPOX+A; CEA down to 29 in 12/17
1/18: CAPOX caused bilirubin of 4.5/bad hfs, back to FOLFOX+A
5/18: growth + ascites; 6.4 bilirubin too high for irinitican, start Vectibex
6/18: biliubin down to 2, ascites mostly gone .